Randi on the Road

In Brazil, a long history of fragile X testing, but too few with access to treatment

It was a long series of flights in October to get to Curitiba, Brazil where I was invited to give a lecture by the Instituto Lica Kaesemodel, which is is devoted to fragile X syndrome (FXS).

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Great Progress in FXS Education and Training During Whirlwind Europe Trip

The 19th International Workshop on Fragile X and other Neurodevelopmental Disorders took place in Sorrento from Sept. 18-21. Sorrento is a beautiful coastal town in Southern Italy.

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High in the mountains of Banff, a meeting, a hike and a gondola ride

I had the opportunity in August to travel to Canadian Banff Conference Center in Alberta and meet with the other principal investigators and team members...

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Back to Juarez for screening and plans to expand

Dr. Ana Carolina Aguilar, a neurologist in Mexico, quickly arranged a conference in support of the Fragile X Project initiated by the Club Rotario Campestre de Juarez.

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Temples, castles and a drive to address fragile X in Japan

I was invited by Dr. Shinji Saito, president of the Japanese Society of Child Neurology, to give a keynote lecture on “Targeted Treatments for Fragile X Syndrome” at their 61st annual meeting in Nagoya, Japan.

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Juarez, Mexico: Creating a Fragile X Testing and Treatment Program

I was invited by the Club Rotario Juarez Campestre to speak about fragile X syndrome and related disorders. This is an all-women Rotary club, and one of the members has a son with fragile X syndrome.

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