This guide was designed for you as the parent of a child with a craniofacial anomaly. Whether your son or daughter is a newborn baby or an older child, dealing with a craniofacial disorder can be an emotional, stressful and often fearful experience. It is natural for you to be anxious and to have many questions about your child's immediate needs and long-term care.

The information in this section is designed to answer your initial questions about certain disorders associated with craniofacial anomalies and provide resources for further guidance.

Special note to parents

If you are a parent who has just learned that your child has a craniofacial disorder, this situation can evoke a multitude of emotions – fear, guilt and even despair. While your feelings are normal and understandable, be assured that many craniofacial conditions can be improved. In addition, the negative impact of the disorder on your child's health, development and appearance can, in many cases, be significantly decreased.

Children with craniofacial disorders are just as special as other girls and boys. With corrective surgery and proper care, there is every likelihood that your child's appearance will continue to improve, and that he or she will develop into a healthy, happy and attractive person.