The Cleft and Craniofacial Program has identified numerous support groups and organizations that can be helpful for pediatric patients with cleft and craniofacial problems.
AboutFace USA
- Website: http://www.aboutfaceusa.org
- Tel: 888-486-1209
- Email: AboutFaceUS@aol.com
About Face International
- Website: http://www.aboutfaceinternational.org
- Tel: 800-665-3223
- Email: info@aboutfaceinternational.org
Children's Craniofacial Association
- Website: http://www.ccakids.com
- Tel: 800-535-3643
- Email: contactcca@ccakids.com
Cleft Lip and Palate Parent Support Group
- Sacramento, CA
- Contact: Gary Hori
- Tel: 916-456-2814
Cleft Palate Foundation of America/CLEFTLINE
- Website: http://www.cleftline.org
- Tel: 800-242-5338
- Email: info@cleftline.org
Genetic Alliance
- Website: http://www.geneticalliance.org
- Tel: 202-966-5557
- Email: info@geneticalliance.org
Med Help International
- Website: http://www.medhelp.org
Moebius Foundation
- Website: http://www.moebiussyndrome.com
- Tel: 660-834-3406
- Tel Northern CA: 510-835-1318
- Email: vicki@moebiussyndrome.com
SMILES
- Website: http://www.cleft.org
- Email: smiles@cleft.org
Wide Smiles
- Website: www.widesmiles2.org
- Tel: 209-942-2812
- Email: josmiles@yahoo.com
22qandyou Newsletter
- Website: www.cbil.upenn.edu/VCFS/22qandyou
- Tel: 215-590-2920
- Email: lunny@email.chop.edu