CHPR Staff

CHPR Partners with the NEC Society to Build Patient-Centered Outcomes Research Capacity

The ultimate goal of the NEC Society is to eliminate necrotizing enterocolitis (NEC), a devastating intestinal disease that primarily affects premature infants. Its shorter-term objective is to establish the infrastructural capacity to conduct research into preventing and treating NEC that is “patient-centered outcomes research” (PCOR)—i.e. research informed and otherwise contributed to not just by scientists and clinicians but also by families and other stakeholders. As described on the NEC Society’s website, this multidisciplinary, collaborative organization wants to “fully utilize the patient-family voice in the development, implementation, analysis, and dissemination of future research projects.”

The UC Davis Center for Healthcare Policy and Research (CHPR) is partnering with the NEC Society to help it build its PCOR capacity.

Mark A. Underwood, M.D., M.A.S., Professor and Chief of Neonatology at UC Davis Health and an expert on NEC, said that “The impact of this partnership will be fewer deaths and less long-term disease among very preterm infants, not just in Northern California but across the world.”

The partnership is funded through a $250,000 Engagement Award the NEC Society recently received from the Patient-Centered Outcomes Research Institute (PCORI). CHPR will contribute its expertise in PCOR, comparative-effectiveness research (CER) and community engagement to help the NEC Society not only build its own PCOR capacity but also establish a model for conducting patient-centered research that can be used by other organizations focused on other rare, neonatal diseases.

More information about this two-year project partnership can be found on the NEC Society’s website.     

Center for Healthcare Policy and Research celebrated 25 years of accomplishments!

UC Davis leadership and former Directors of CHPR joined faculty and staff to celebrate the 25^th Anniversary of the UC Davis Center for Healthcare Policy and Research and the 50^th Anniversary of the UC Davis School of Medicine. 

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