NEWS | June 15, 2020

New UC Davis cystic fibrosis parent peer support group launched

(SACRAMENTO)

A new parent peer support group launched on Saturday via Zoom for parents and families of UC Davis pediatric cystic fibrosis (CF) patients.

The group provides a virtual venue for parents to share their experiences caring for a child with cystic fibrosis.  The group provides a virtual venue for parents to share their experiences caring for a child with cystic fibrosis.

The group provides a venue for parents to share their experiences caring for a child with CF. It is hosted by UC Davis pediatric pulmonologist Rory Kamerman-Kretzmer and nurse specialist Kim Jahnke.

“At UC Davis, our pediatric cystic fibrosis team knows that living with CF can be an isolating experience, not only for patients but for their parents and caregivers. Anxiety and depression are common in the CF community across the country, especially among parents, and people with CF are generally unable to physically gather in supportive groups due to infection risks,” Kamerman-Kretzmer said.

Six families virtually attended the first group meeting. The group is a free service that will continue on a monthly basis, with weekend and weekday evening times to accommodate the busy schedules of families.  

“The group went great and was well received by the families who participated,” said Kamerman-Kretzmer. “By connecting families virtually across Northern California, we feel that parents can be a source of support for each other.”