Dissemination and Outreach Core
The Dissemination and Outreach Core of the UC Davis MIND Institute ACE will widely disseminate the findings of the Center for the Development of Phenotype-Based Treatments of Autism Spectrum Disorder to practitioners as well as persons with ASD and their families and caregivers. The Outreach Core will support two-way communication between the scientists of the Autism Center of Excellence and the broad ASD Scientific community, along with the community of stakeholders and practitioners both locally and nationally. The core will increase evidence-based screening and identification procedures for ASD in rural areas through pediatrician outreach and training and increase family advocacy, empowerment and access to care through a new family navigator program. These outreach efforts will ensure information from the project is disseminated, provide a cadre of individuals who can provide feedback to the research team, and support participation of under-represented children and families in future research by increasing identification and access to care. In addition, the family navigator program will increase linkages between the MIND community clinic and the research programs.
The specific objectives of the Dissemination and Outreach Core are:
Provide the findings of the Center for the Development of Phenotype-Based Treatments of Autism Spectrum Disorder to a wide audience of practitioners, persons with ASD, and their families and caregivers.
- Hold monthly Facebook Live sessions with researchers aimed at a lay audience discussing the ACE projects and findings
- Researchers will present progress in studies at scientific events such as the MIND Summer Institute, and the Research Seminar Series
- The MIND Institute will host at least one speaker affiliated with an ACE at our Distinguished Lecturer Series 2019-2020 in order to further explore collaborative efforts between centers
- Established the ACE website »
Support two-way communication between the scientists of the Autism Center of Excellence and the broad ASD scientific community, along with the community of stakeholders and practitioners both locally and nationally.
- Establish monthly meetings with all ACE collaborators and staff where autism scientists will present recent findings.
- Establish a stakeholder group to provide input to the project and assist with dissemination
Increase evidence-based screening and identification procedures for ASD in rural areas through pediatrician outreach and training.
- Develop a protocol and provide training to clinicians in family centered care for children and adolescents with ASD
- Retain a bilingual, bicultural Developmental/Behavioral Pediatrician to lead our program to enhance outreach to rural physicians.
- Program development is underway to use a telehealth model to train physicians in screening and to provide ongoing consultation for challenging cases.
Increase family self-advocacy, empowerment and access to care through the new MIND Institute Family Navigator Program.
- Families referred through the MIND Clinic can access a family mentor and develop an individual plan of support to help understand the diagnosis and access services.
- The ACE team collaborates with the Center for Excellence in Developmental Disabilities (CEDD), the Autism Intervention Research Network for Behavioral Health (AIR-B), Family Resource Centers, and other community partners to develop materials and hold parent education workshops.
- Family Navigator staff will develop a program that empowers families in becoming advocates and active partners in their child's treatment.