Study: Early communication measures in children with Down syndrome

Contact: Please call the Study Coordinator at 916-703-0226 or email: hs-language.research@ucdavis.edu for more information about this study.

If you have a son or daughter with Down syndrome ages 2-7, you and your child are invited to participate in a research study being conducted by Dr. Angela John Thurman at the Laboratory on Language Development in Neurodevelopmental Disorders at the UC Davis MIND Institute. The goal of this research study is to learn more about how samples of early communication and spoken language skills can be used to measure change over time in communication/spoken language, problem solving, and behavior in individuals with Down syndrome. In the future, it is possible that measures of early communication skills may be useful as one way to learn whether different medications or behavioral interventions can help individuals with Down syndrome learn to use language more effectively.

If you are interested in participating in this study, you and your son or daughter will be asked to visit one of our study sites 3 times over a 1-year period. During these visits, your child will participate in a variety of activities to help us learn more about his or her communication skills and problem-solving abilities. Some of these activities will be more structured and some will be more play based. We will also conduct some interviews with you and ask you to fill out some questionnaires to learn more about your child. If you would like to learn more about this study, please call the Study Coordinator at 916-703-0226 or email: hs-language.research@ucdavis.edu.

Study: Language development in young adults with FXS

Contact: Please call the Study Coordinator at 916-703-0485 or email: hs-language.research@ucdavis.edu for more information about this study.

If you have a son or daughter with fragile X syndrome in or entering the last year of high school, you and your child are invited to participate in a research study being conducted by Dr. Leonard Abbeduto at the Laboratory on Language Development in Neurodevelopmental Disorders at the UC Davis MIND Institute and two other sites across the United States.

The goal of the study is to learn more about how certain abilities (e.g. memory), certain types of experiences (e.g. interactions with family), and biology affect language abilities in adulthood for both males and females with fragile X syndrome. We are also interested in understanding how these factors and language/literacy skills affect the abilities of these young adults to function independently. Such information will help us suggest ways to improve teaching and therapy techniques for these individuals.

If you are interested in participating in this study, you and your son or daughter will be asked to participate in 4 assessment visits over a 3-year period. Two visits will be completed at one of our study sites and two will be completed from home. During these visits some assessments will be done directly with your son/daughter, some assessments will be done directly with you, and we will ask you to provide some additional information about your son/daughter. Travel costs will be reimbursed.

Contact:  Please call Dr. Laura del Hoyo at 916-734-4847 or email: ldelhoyo@ucdavis.edu for more information about this study.

If you are older than 18 years old and have a son or daughter with Autism Spectrum Disorder between 6 and 23 years of age, you and your child are invited to participate in a research study being conducted by Dr. Leonard Abbeduto at the Laboratory on Language Development in Neurodevelopmental Disorders at the MIND Institute, University of California, Davis.

The goal of the study is to train parents to administer a spoken language test to their sons/daughters in their homes. We hope to use the test in future treatment studies that will reduce the burden of travel on families, allowing them to receive therapies at home. An experienced professional (e.g., psychologist, speech language pathologist) will provide parent training through written materials, video examples, and real-time coaching. All training will be conducted in your home using telecommunication technology (i.e. Skype).  We also will be adapting the language test and the training in linguistically and culturally appropriate ways for use with Spanish-speaking families. Therefore, we are recruiting both families who primarily or exclusively speak Spanish at home with their children as well as families who primarily or exclusively speak English at home with their children.

If you are interested in participating in this study, you and your son or daughter will be asked to participate in 8 to 10 distance sessions at home over the course of 8 to 10 weeks. Some of these sessions will involve you and your son/daughter, while others will just require your participation. We will provide you all the materials needed during the training (a laptop, Bluetooth earpiece, webcam, etc.)  You will be provided an honorarium of $100 to thank you for your participation.

Study: Estudio sobre una prueba de lenguaje aplicada por los padres en el hogar para personas con Trastorno del Espectro Autista

Contact:  Si desea obtener más información sobre este proyecto, llame Dr. Laura del Hoyo al 916-734-4847 o envíe un correo electrónico a ldelhoyo@ucdavis.edu.

Si usted es mayor de 18 años y tiene un hijo o hija con trastorno del espectro autista de entre 6 y 23 años de edad, usted y su hijo están invitados a participar en un estudio de investigación conducido por el Dr. Leonard Abbeduto en el Laboratorio de Desarrollo del Lenguaje en Trastornos del  Neurodesarrollo en el Instituto MIND, Universidad de California, Davis.

El objetivo de este estudio es capacitar a los padres para dar una prueba de lenguaje expresivo a sus hijos desde sus hogares. Esperamos que esta prueba pueda utilizarse en futuros estudios de tratamiento. Esto reducirá la carga familiar que supone de viajar, permitiendo así recibir terapia desde el hogar. Un profesional con experiencia (ej., psicólogo o terapeuta del lenguaje) proporcionará capacitación a los padres a través de materiales escritos, ejemplos de video y apoyo en tiempo real. Todas las sesiones de capacitación se llevarán a cabo en su hogar utilizando tecnología de telecomunicación (ej., Skype). También adaptaremos la prueba de lenguaje y  la capacitación  para que sean lingüística y culturalmente apropiados para familias de habla hispana. Por lo tanto, estamos reclutando tanto a familias que principalmente o exclusivamente hablen español en el hogar con sus hijos como a familias que principalmente o exclusivamente hablan inglés en el hogar con sus hijos.

Si está interesado en participar en este estudio, se le pedirá a usted y a su hijo que participen en  de 8 a 10 sesiones a distancia desde su hogar  en el transcurso de 8 a 10 semanas. Algunas de estas sesiones lo involucrarán a usted y a su hijo / hija, mientras que otras solo requerirán su participación. Le proporcionaremos todos los materiales necesarios durante el entrenamiento (una computadora portátil, auricular Bluetooth, cámara web, etc.) Se le proporcionará un honorario de $100 para agradecerle su participación.

Study: Grupo de discusión para padres de jóvenes con trastorno del espectro autista

Contact:  Si desea obtener más información sobre este proyecto, llame Dr. Laura del Hoyo al 916-734-4847 o envíe un correo electrónico a ldelhoyo@ucdavis.edu.

Si usted es mayor de 18 años, tiene un hijo o hija con trastorno del espectro autista de entre 6 y 23 años, y la lengua predominante en su hogar es el español, se le invita a usted a participar en grupo de discusión conducido por la Dra. Laura del Hoyo, investigadora en el Laboratorio de Desarrollo del Lenguaje en Trastornos del  Neurodesarrollo del Instituto MIND, Universidad de California, Davis (Liderado por el Dr. Leonard Abbeduto) El objetivo de la discusion en grupo es conocer la opinión de un grupo de padres hispanohablantes de personas con TEA acerca de un nuevo programa de capacitación que tiene como objetivo enseñar a los padres a evaluar las habilidades lingüísticas de sus hijos en el hogar mediante una prueba llamada Muestreo del Lenguaje Narrativo (MLN). Se le pedirá que revise los materiales de la capacitación  en casa antes de acudir al grupo focal. La sesión en grupo se llevará a cabo en el MIND Institute y durará alrededor de 1 hora. Durante esta sesión usted dará su opinión y discutirá,  junto con 4 o 5 padres más, acerca de los materiales que previamente han revisado. EL objetivo del grupo de discusión es asegurarse de que los materiales para la capacitación sean comprensibles y útiles para padres. En el futuro, la prueba MLN aplicada en el hogar puede hacer posible que las familias de habla hispana afectadas por TEA participen en estudios de tratamiento desde sus hogares sin la necesidad de desplazarse a la clínica.

La sesión en grupo se puede llevar a cabo por la mañana o por la tarde, dependiendo de cuándo estén disponibles la mayoría de los participantes. Se le proporcionará un honorario de $ 20  para agradecerle su participación.

Contact: Please call the Study Coordinator at 916-703-0226 or email: hs-language.research@ucdavis.edu for more information about this study.

You and your child are invited to participate in a research study being conducted by Dr. Leonard Abbeduto at the Laboratory on Language Development in Neurodevelopmental Disorders at the UC Davis MIND Institute. We are currently enrolling:

Typically developing children ages 3-6
Children and adolescents with Down syndrome ages 6-17
Children and adolescents with fragile X syndrome ages 6-17

The goal of this study is to develop a comprehensive, computerized memory assessment for use in populations with intellectual disabilities. It is our hope that this memory assessment will aid in diagnosing memory problems in these and other populations. If you decide that you and your son or daughter would like to be in this study, we will ask you to visit one of the study sites three times over a period of approximately 6 months. At each visit, your son or daughter will complete the Arizona Memory Assessment, which is administered on a touch tablet. We will also be collecting samples of your son/daughter's cognitive and verbal abilities through a series of memory and speech measures administered by study staff, as well as a variety of sleep measures. Some of these measures will be administered several times across visits in order to determine if the information we obtain is consistent. Additionally, tabletop versions of a cognitive assessment will be performed. We will also ask you to fill out some questionnaires and participate in an interview about your child's behavior and everyday living skills.