Current Research Studies
If you have a son with fragile X syndrome between 3.00 and 12.99 years of age who has limited expressive language, you and your child are invited to participate in a research study being conducted by Dr. Angela Thurman at the MIND Institute University of California, Davis to learn more about how measures of expressive language and social communication can be used to measure change over time in communication skills, problem solving, and other behaviors in children with fragile X syndrome. In the future, it is possible that measures of expressive language and social communication may be useful as one of the ways to learn whether different treatments can help individuals with fragile X syndrome and other neurodevelopmental disorders to learn language more effectively.
If you decide that you and your son are interested in being in this study, we will ask you to visit the MIND Institute for two consecutive days. During your visits, your son will participate in some activities that will help us learn more about his problem-solving skills, language ability, nonverbal communication skills, attention, and other aspects of his development. We will also ask you to fill out some questionnaires and participate in an interview about your child's developmental history and current abilities.
You and your child are invited to participate in a research study being conducted by Dr. Leonard Abbeduto at the Laboratory on Language Development in Neurodevelopmental Disorders at the MIND Institute, University of California, Davis. We are currently enrolling:
Typically developing children ages 3-6
Children and adolescents with Down syndrome ages 6-17
Children and adolescents with fragile X syndrome ages 6-17
The goal of this study is to develop a comprehensive, computerized memory assessment for use in populations with intellectual disabilities. It is our hope that this memory assessment will aid in diagnosing memory problems in these and other populations. If you decide that you and your son or daughter would like to be in this study, we will ask you to visit one of the study sites three times over a period of approximately 6 months. At each visit, your son or daughter will complete the Arizona Memory Assessment, which is administered on a touch tablet. We will also be collecting samples of your son/daughter's cognitive and verbal abilities through a series of memory and speech measures administered by study staff, as well as a variety of sleep measures. Some of these measures will be administered several times across visits in order to determine if the information we obtain is consistent. Additionally, tabletop versions of a cognitive assessment will be performed. We will also ask you to fill out some questionnaires and participate in an interview about your child's behavior and everyday living skills.