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      <title><![CDATA[Patient Stories]]></title>
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         <title><![CDATA[Teenage daughter’s bone marrow saves dad’s life]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/teenage-daughters-bone-marrow-saves-dads-life/2026/04</link>
         <pubDate>Fri, 17 Apr 2026 00:00:00 -0700</pubDate>
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         <description><![CDATA[Viana’s bone marrow donation made a life-changing difference to her father, Hai Trinh.]]></description>
         <content:encoded><![CDATA[<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2026/04/images-body/hai-and-viana.jpg" alt="Hai and daughter Viana stand close together outdoors in front of a house and leafy plants. They are forming a heart shape with their hands at the center of the image."></figure>
<p>Viana&rsquo;s bone marrow donation made a life-changing difference to her father, Hai Trinh, who suffered from hypoplastic MDS/severe aplastic anemia.</p>
<p>His bone marrow transplant was a success!</p>
<p>&ldquo;I am forever grateful. For my daughters, my wife, the UC Davis Health staff,&rdquo; Hai Trinh said. &ldquo;It was a miracle.&rdquo;</p>
<p>Our Pediatric Stem Cell Transplant and Cellular Therapy team is proud to now offer this vital stem cell source for both adult and pediatric patients in the greater Sacramento area &mdash; and it is an example of the strength and collaboration of our combined pediatric and adult transplant programs.</p>
<p><a href="https://health.ucdavis.edu/children/news/headlines/teenaged-daughters-bone-marrow-saves-dads-life/2026/02">Read the full story</a></p>]]></content:encoded>
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         <title><![CDATA[Patient born with organs outside of her abdomen receives transformative care]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/patient-born-with-organs-outside-of-her-abdomen-receives-transformative-care/2026/02</link>
         <pubDate>Mon, 02 Feb 2026 00:00:00 -0800</pubDate>
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         <description><![CDATA[Everly received a life-saving surgical repair in October 2024. Now that she has recovered, she is unstoppable.]]></description>
         <content:encoded><![CDATA[<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2026/02/images-body/everly-family-collage.jpg" alt="Image 1: Baby Everly with her mother. Image 2: Everly and her baby sibling">
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<p>&ldquo;Everly is truly a miracle! Since her repair in October 2024, she has been absolutely thriving. She never let her condition get in her way, but now that she has recovered, she is unstoppable. She is currently enjoying dance, taking swimming lessons, doing well in school, and has a wonderful group of friends. She also became a big sister this year.</p>
<p>We are so grateful to the doctors and nurses at UC Davis for being such an important part of her journey.&rdquo;</p>
<p>&ndash; Brianne Jacobsen, mother of Everly, whose daughter was born with her internal organs sticking out of her abdomen, a birth defect known as omphalocele.</p>
<p><a href="https://health.ucdavis.edu/children/news/headlines/patient-born-with-organs-outside-of-her-abdomen-receives-transformative-care-/2022/05">Read Everly&rsquo;s full story</a></p>]]></content:encoded>
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         <title><![CDATA[Two years after epilepsy surgery, 8-year-old is seizure-free and medication-free]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/savons-story/2026/01</link>
         <pubDate>Tue, 20 Jan 2026 00:00:00 -0800</pubDate>
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         <guid isPermaLink="false">https://health.ucdavis.edu/blog/patient-stories/savons-story/2026/01</guid>
         <description><![CDATA[A team of pediatric epilepsy experts and a successful neurological surgery helped Savon become seizure-free.]]></description>
         <content:encoded><![CDATA[<p>&ldquo;Unstoppable.&rdquo; That&rsquo;s how UC Davis Health pediatric epileptologist <a href="https://health.ucdavis.edu/neurology/team/32264/trishna-kantamneni---pediatric-epilepsy---pediatric-neurology-sacramento/">Trishna Kantamneni</a> describes her 8-year-old patient, Savon Maina. Kantamneni leads Savon&rsquo;s team of specialists and directs pediatric epilepsy care in the <a href="https://health.ucdavis.edu/neurology/services-specialties/epilepsy/">Comprehensive Epilepsy Program</a>.</p>
<p>Kantamneni first met Savon several years ago. At that time, he frequently visited the emergency department with injuries from falls during seizures. Even though he took high doses of medication for his epilepsy, Savon experienced up to 10 seizures a day. He was stuttering and had nausea, vomiting and constipation.</p>
<p>&ldquo;There were four different medicines, and they impacted him very negatively,&rdquo; said Francis Kageche, Savon&rsquo;s father. &ldquo;He was aggressive to his brother. He would pinch, scratch, and in some cases, bite him.&rdquo; Savon also experienced attention and speech difficulties.</p>
<p>Savon&rsquo;s family and care team attributed these troubling effects to many factors, including medications, uncontrolled seizures and a prior brain injury. So, Kantamneni initiated Savon&rsquo;s evaluation for epilepsy surgery. This surgery would offer him the chance of a seizure-free life without medications.</p>
<p>Evaluation included a stay of several days in the UC Davis <a href="https://health.ucdavis.edu/news/headlines/epilepsy-detectives-new-unit-helps-doctors-locate-and-diagnose-seizures-more-effectively/2024/02">epilepsy monitoring unit</a>, or EMU, in the hospital. There, Savon&rsquo;s seizures were monitored in real time and recorded for analysis.</p>
<p><a href="https://health.ucdavis.edu/children/news/headlines/two-years-after-epilepsy-surgery-8-year-old-is-seizure-free-and-medication-free-/2025/11">Read Savon&rsquo;s full story</a><img src="https://youtu.be/AVD6AaCOtEA?si=OK_nd5oAHR0kkW1G" alt=""></p>]]></content:encoded>
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         <title><![CDATA[Fetal surgery at UC Davis Health gives Ohio baby new hope]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/fetal-surgery-at-uc-davis-health-gives-ohio-baby-new-hope/2026/01</link>
         <pubDate>Tue, 06 Jan 2026 00:00:00 -0800</pubDate>
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         <description><![CDATA[Lexy and Jack Harrington were moving from Ohio to Florida when a spina bifida diagnosis changed their pregnancy plans.]]></description>
         <content:encoded><![CDATA[<p>Lexy and Jack Harrington were moving from Ohio to Florida when a spina bifida diagnosis changed their pregnancy plans.</p>
<p>After hearing about our landmark clinical trial, the couple researched the CuRe Trial, the world&rsquo;s first spina bifida treatment combining fetal surgery with stem cell treatment.</p>
<p>Surgeon Diana Farmer called the couple to ease their hesitation about the trial. Diana is an internationally renowned fetal and neonatal surgeon who helped pioneer this treatment for spina bifida. Lexy and Jack flew to Sacramento to meet with her and the team, and immediately enrolled in the trial.</p>
<p>&ldquo;I was acknowledged as a mother, as a wife, as a human. It was unbelievable,&rdquo; Lexy said. &ldquo;I left there knowing I wanted that team to take care of me and my child throughout the whole journey.&rdquo;</p>
<p>Spina bifida occurs when the spinal cord fails to close properly during the early stages of pregnancy. The birth defect can lead to a range of lifelong cognitive, mobility, urinary and bowel disabilities.</p>
<p>Lexy&rsquo;s C-section was scheduled for late December, but Baby Millie had other ideas. Less than three weeks later, Lexy went into labor. Millie arrived at 28 weeks and one day on Oct. 31, weighing 2 pounds, 10 ounces.</p>
<p>Although a long hospital stay was not what the Harringtons had planned, the couple again found themselves in the right place. Not only is UC Davis Children&rsquo;s Hospital home to the innovative CuRe Trial, it also has a level 4-designated NICU providing the highest level of clinical care for newborns and premature babies, like Millie.</p>
<p>Millie celebrated her 1st birthday last month and is developmentally on track.</p>
<figure class="image img-center"><img src="/media-resources/contenthub/post/internet/patient-stories/2026/01/images-body/millie-harrington.jpg" alt="Image 1: Millie swaddled in a blanket. Image 2: Millie sitting up in a chair. Image 3: Millie sits on Jack Harrington&rsquo;s lap with Lexy kneeling next to him. Image 4: Millie sits on the floor holding a toy.">
<figcaption>Millie has made great strides in a year. She&rsquo;s crawling now and pulling herself up to stand.</figcaption>
</figure>
<p><a href="https://health.ucdavis.edu/news/headlines/fetal-surgery-at-uc-davis-health-gives-ohio-baby-new-hope/2025/11">Read the full story</a></p>]]></content:encoded>
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         <title><![CDATA[Sleep apnea treatment improves quality of life for Redding teen]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/sleep-apnea-treatment-improves-quality-of-life-for-redding-teen/2025/10</link>
         <pubDate>Mon, 27 Oct 2025 00:00:00 -0700</pubDate>
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         <description><![CDATA[From the time he was a toddler, Emilio had trouble sleeping. But it wasn’t just usual restlessness. His family knew something was wrong, so they turned to our pediatric pulmonology and sleep medicine program.]]></description>
         <content:encoded><![CDATA[<p>Emilio was a toddler when his parents noticed he wasn&rsquo;t getting the oxygen he needed when he slept. They knew they needed to find the right pediatric specialists to help their son.</p>
<p>Enter UC Davis Children&rsquo;s Hospital, home to a comprehensive pediatric pulmonology and sleep medicine program that offers a variety of services for children with respiratory and sleep conditions.</p>
<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2025/10/images-body/emilio-and-audrey.jpg" alt="Respiratory therapist Audrey helping Emilio with his CPAP mask">
<figcaption>Audrey Chikalla, a respiratory therapist with UC Davis Pediatric Pulmonology and Sleep Medicine, helps Emilio adjust his CPAP mask.</figcaption>
</figure>
<p>Emilio&rsquo;s family met with pulmonologist Dr. Kiran Nandalike and respiratory therapist Audrey Chikalla. A sleep study determined Emilio had obstructive sleep apnea (OSA), a disorder characterized by repeated pauses in breathing during sleep. Emilio also has Down syndrome. Individuals with Down syndrome are much more likely to have OSA than individuals without Down syndrome.</p>
<p>The team determined Emilio needed surgery to remove his tonsils and adenoids, the first line of treatment for OSA in children. Thanks to the surgeries, Emilio&rsquo;s sleep apnea improved for many years. But when he began having trouble again, his medical team decided that Emilio would benefit from CPAP treatment, or continuous positive airway pressure.</p>
<p>Now a consistent CPAP user, Emilio enjoys much better sleep and much better days!</p>
<p><a href="https://health.ucdavis.edu/children/news/headlines/sleep-apnea-treatment-improves-quality-of-life-for-redding-teen/2025/09">Read Emilio&rsquo;s full story</a></p>]]></content:encoded>
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         <title><![CDATA[She dances. Dreams of being a doctor. Shines with a heart defect.]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/she-dances-dreams-of-being-a-doctor-shines-with-a-heart-defect/2025/10</link>
         <pubDate>Mon, 13 Oct 2025 00:00:00 -0700</pubDate>
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         <category><![CDATA[Heart Health]]></category>
         <guid isPermaLink="false">https://health.ucdavis.edu/blog/patient-stories/she-dances-dreams-of-being-a-doctor-shines-with-a-heart-defect/2025/10</guid>
         <description><![CDATA[Learn how our pediatric specialists gave Ruby a bright future and the inspiration to become a doctor.]]></description>
         <content:encoded><![CDATA[<p>For the first six weeks of Ruby&rsquo;s life, she was hitting all her milestone developments. But a few days after her six-week checkup, Ruby suddenly became incredibly sick. She was lethargic, vomiting, and even gasping for air.</p>
<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2025/10/images-body/ruby.jpg" alt="Pediatric cardiology patient Ruby">
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</figure>
<p>Hayleigh and Aaron were immediately concerned, but assumed she had the nasty flu that was going around. Call it a mother&rsquo;s intuition or a father&rsquo;s love, but they decided to take Ruby to the hospital&hellip; just in case.</p>
<p>The local hospital didn&rsquo;t have a pediatric unit, so Hayleigh and Ruby were immediately transferred to <a href="https://health.ucdavis.edu/children/">UC Davis Children&rsquo;s Hospital</a>, Sacramento&rsquo;s only nationally ranked comprehensive hospital for children, with a deep roster of pediatric specialists. Ruby would need all of that expertise, because when she arrived, she stopped breathing altogether.</p>
<p>The doctors discovered that Ruby had a congenital heart defect. Acting fast, they placed her on an <a href="https://health.ucdavis.edu/children/services/PICU/services/extra-corporeal-life-support">ECMO machine</a>, the most intensive form of life support that does the work of the lungs and the heart. Doctors discovered that Ruby&rsquo;s aortic valve was deformed and would have to be replaced, as she wasn&rsquo;t getting enough blood and oxygen to her organs.</p>
<p>Ruby&rsquo;s family met anesthesiologist Dua Anderson and <a href="https://physicians.ucdavis.edu/medicalcenter/details/849/gary-raff-pediatric_cardiac_surgery-pediatric_surgery-surgery_-_cardiothoracic-surgery_-_thoracic-sacramento">cardiac surgeon Gary Raff</a>, who shared the news that although something was very wrong with Ruby&rsquo;s heart, they and the team at UC Davis Children&rsquo;s Hospital were going to be able to help. Dr. Raff explained what was happening, the plan of action, and how they were going to keep Ruby alive.</p>
<p>The ECMO machine kept Ruby stable for a few days while the team prepped for open-heart surgery. And within hours of taking Ruby back to the operating room, Dr. Raff and the team returned to Ruby&rsquo;s parents and family to share the good news that the procedure was successful.</p>
<p>Ruby wasn&rsquo;t fully out of the woods yet, relying on a ventilator for a few more weeks to rebuild her strength. She even had to restart learning skills such as swallowing. But one by one, her systems and organs started to function again, showing everyone that Ruby was already a fighter.</p>
<p><a href="https://health.ucdavis.edu/discovering-healthy/patient-stories/ruby">Read Ruby&rsquo;s full story</a></p>]]></content:encoded>
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         <title><![CDATA[Minimally invasive ablation treats osteoid osteoma in young athlete]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/minimally-invasive-ablation-treats-osteoid-osteoma-in-young-athlete/2025/10</link>
         <pubDate>Wed, 01 Oct 2025 00:00:00 -0700</pubDate>
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         <description><![CDATA[A football injury leads to discovery of a tumor in boy’s leg.]]></description>
         <content:encoded><![CDATA[<p>When playing football, Ryder Phippin got hit hard, like so many times before. He pushed through the pain and finished the game, but his leg pain continued intermittently. His parents took him to see a doctor a couple months later.</p>
<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2025/10/images-body/Ryder.jpg" alt="Ryder in his football jersey with a boot cast on his leg">
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<p>His doctor figured Ryder&rsquo;s injury was most likely a calcified contusion, a condition where bone tissue forms within a muscle after a bruise. He recommended rest, ice and physical therapy, which is usually effective in managing symptoms.</p>
<p>&ldquo;He told us it would just go away eventually,&rdquo; said Jennifer Phippin, Ryder&rsquo;s mother. But the little bulge and hard spot in the skin kept getting worse.</p>
<p>By this time, Ryder was in excruciating pain, especially at night. On a return visit to the doctor, the medical team took an X-ray and the results were alarming.</p>
<p>&ldquo;It was a surreal moment,&rdquo; Jennifer said, recalling how she heard the doctor say, &ldquo;osteoid osteoma.&rdquo; &ldquo;I didn&rsquo;t know what that meant. She just kept saying &lsquo;it&rsquo;s not cancer, it&rsquo;s not cancer.&rsquo; I was very confused by that and I was thinking, &lsquo;You mean it could have been?&rsquo;&rdquo;</p>
<p>An <a href="https://orthoinfo.aaos.org/en/diseases--conditions/osteoid-osteoma">osteoid osteoma</a> is a benign bone tumor that is often characterized by injury to the area where the tumor occurs. The main symptom is pain which often gets worse at night. It was exactly what Ryder had experienced.</p>
<p>Ryder needed a pediatric orthopaedist. He was connected to UC Davis Health and to <a href="https://health.ucdavis.edu/medical-center/team/32305/r--lor-randall---orthopaedic-surgery---pediatric-oncology---oncology-sacramento/">R. Lor Randall</a>, a renowned pediatric surgeon and oncologist and also the chair of the <a href="https://health.ucdavis.edu/orthopaedics/">Department of Orthopaedic Surgery</a> at UC Davis Health.</p>
<p>&ldquo;Osteoid osteomas aren&rsquo;t typically that large, but his tumor was very large, over a centimeter and growing,&rdquo; Jennifer recalled the doctor explaining. &ldquo;He also said the tumor wasn&rsquo;t showing up on the X-ray like a normal osteoid osteoma does.&rdquo;</p>
<p>Despite the challenges, Randall assured the Phippins he could likely perform a CT-guided radiofrequency ablation, a modern procedure that burns out the tumor.</p>
<p><a href="https://health.ucdavis.edu/news/headlines/minimally-invasive-ablation-treats-osteoid-osteoma-in-young-athlete/2025/09">Read Ryder&rsquo;s full story</a></p>]]></content:encoded>
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         <title><![CDATA[We love to hear from families after their care experience]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/we-love-to-hear-from-families-after-their-care-experience/2025/09</link>
         <pubDate>Mon, 15 Sep 2025 00:00:00 -0700</pubDate>
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         <guid isPermaLink="false">https://health.ucdavis.edu/blog/patient-stories/we-love-to-hear-from-families-after-their-care-experience/2025/09</guid>
         <description><![CDATA[A mother expresses appreciation for the compassionate care her daughter received from the pediatric emergency department team.]]></description>
         <content:encoded><![CDATA[<p>One evening in June, my 18-month-old daughter Shea started having difficulty breathing. To say that my husband and I were scared would be a massive understatement. Shea is our only child &mdash; I was then six months pregnant with our second &mdash; and she had never experienced any health issues prior to this evening.</p>
<p>My husband and I took her to the UC Davis Health Emergency Department. No parent wants to take their child to the ED, especially in the evening after bedtime. As someone who worked in emergency departments for many years, I was frankly wary about what we might experience in terms of patient care and had low expectations, given the late hour and the high patient demand that is so common in EDs.</p>
<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2025/09/images-body/shea-in-the-hospital.jpg" alt="Shea receiving a breathing treatment with her dad in the hospital" width="250">
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<p>Boy, was I wrong.</p>
<p>From the moment we checked Shea in, every staff member we encountered was absolutely exceptional! We were seen by triage within 15 minutes of arrival. My mind was blown.</p>
<p>The nurse who completed the initial assessment was so kind and gentle with our daughter. Another nurse came by and blew bubbles to distract her. I can&rsquo;t tell you how much this meant to our family, to see people who clearly cared about their patients and went out of their way to make us comfortable.</p>
<p>I don&rsquo;t think any of these staff members knew that I was a colleague, so this was not &ldquo;special treatment&rdquo; &mdash; this was simply them doing a wonderful job for one of their patients.</p>
<p>We were roomed and again seen very quickly by the Pediatric ED nurse and doctor. Our nurse was exceptional &mdash; she was kind, thoughtful, responsive and communicative. She consistently went out of her way to take great care of our daughter and support us completely-freaked-out new parents. This was a wonderful nurse working with a high level of integrity, competence and compassion.</p>
<p>Our doctors were all absolutely wonderful with Shea as well. Our initial doctor brought in a small flashlight to help distract Shea when he was assessing her, which she loved. The other doctors were similarly kind and playful, making this scary moment so much easier for our family.</p>
<p>In the morning, a new nurse signed in. He helped us sing to our daughter to distract her during vitals and he clearly made every effort to help our discharge go quickly and smoothly.</p>
<p>Shea is doing much better (terrorizing us, per usual) and all is well. I cannot express how much the compassion of the Pediatric ED team helped ease the stress of such a difficult situation and how proud I felt to work at this hospital after my experience with this team.</p>
<p>Thank you, thank you, thank you!</p>
<p>&ndash; Testimonial submitted by Liz Collentine-Cole, Shea&rsquo;s mother</p>]]></content:encoded>
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         <title><![CDATA[‘They gave our child a chance to live a normal life’]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/they-gave-our-child-a-chance-to-live-a-normal-life/2025/09</link>
         <pubDate>Tue, 02 Sep 2025 00:00:00 -0700</pubDate>
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         <description><![CDATA[UC Davis Health surgeons lengthen infant’s jaw so he can breathe on his own.]]></description>
         <content:encoded><![CDATA[<p>Ryder Nunes was diagnosed with <a href="https://rarediseases.org/rare-diseases/pierre-robin-sequence/">Robin sequence</a>, a rare condition in which an infant has a smaller than normal lower jaw and a tongue that falls back in the throat. One out of every 8,500 to 14,000 babies are born with the condition, which had gone undiscovered during pregnancy.</p>
<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2025/09/images-body/ryder-and-katie.jpg" alt="Ryder and his mother Katie">
<figcaption></figcaption>
</figure>
<p>Robin sequence can cause an infant&rsquo;s tongue to be pushed far back in the throat, prompting severe trouble breathing and swallowing without assistance. In severe cases, an infant will need a tracheostomy, a life-saving procedure where a surgeon opens a hole in the patient&rsquo;s neck and connects a tube for unimpeded breathing.</p>
<p>To prepare for the procedure, <a href="https://health.ucdavis.edu/children/team/43442/alexander-marston-pediatric-otolaryngology-facial-plastic-and-reconstructive-surgery-comprehensive-cleft-and-lip-palate-care-rhinoplasty-facial-paralysis-facial-trauma-sacramento">Alex Marston</a>, a pediatric head and neck surgeon and a member on the multidisciplinary <a href="https://health.ucdavis.edu/otolaryngology/our-team/cleft%20and%20craniofacial%20team.html">UC Davis Cleft and Craniofacial team</a>, utilized a <a href="https://health.ucdavis.edu/news/headlines/the-future-of-surgery-using-augmented-reality-goggles-in-the-operating-room/2024/08">new technology called augmented reality</a>, which is being used by some UC Davis Health surgeons.</p>
<p>Through augmented reality goggles, surgeons can project 3D computed tomography (CT) and MRI scans that overlay critical information directly into their field of view.</p>
<p>During the procedure, surgeons made a small incision under Ryder&rsquo;s jaw on both sides of his neck. They cut his mandibular bone, commonly known as the lower jaw, on both sides to separate the front and back of the jaw.</p>
<p>The team placed two distraction devices on each side and attached them with pins to the front and back sections of the bone. Small activation arms were then connected to the distraction devices so that they could be turned and widen the cut mandibular bones.</p>
<p>A few days after surgery, the team maneuvered the activation arms to slowly move Ryder&rsquo;s jaw forward, widening the space between the cut edges of the bone and allowing new bone to form in the space.</p>
<p>&ldquo;We have the utmost gratitude for the UC Davis care team. They gave our child a chance to live a normal life,&rdquo; said Katie Hunter, Ryder&rsquo;s mother.</p>
<p><a href="https://health.ucdavis.edu/news/features/they-gave-our-child-a-chance-to-live-a-normal-life/2025/05">Read Ryder&rsquo;s full story</a></p>]]></content:encoded>
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         <title><![CDATA[CuRe Trial helps Leo have a promising future]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/cure-trial-helps-leo-have-a-promising-future/2025/08</link>
         <pubDate>Fri, 15 Aug 2025 00:00:00 -0700</pubDate>
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         <description><![CDATA[Leo graduated from the CuRe Trial, the world’s first spina bifida treatment combining fetal surgery with stem cells.]]></description>
         <content:encoded><![CDATA[<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2025/08/images-body/leo-and-family.jpg" alt="Leo and his family" width="350" height="422">
<figcaption></figcaption>
</figure>
<p>From the beginning, the <a href="https://studypages.com/s/the-cure-trial-cellular-therapy-for-in-utero-repair-of-myelomeningocele-251856/?ref=gallery">CuRe Trial</a> team was supportive and kind. Maria and Amy gave me so much information and put me in contact with Dr. Farmer, the fetal surgeon. When I spoke with her, it was obvious she is passionate about improving the lives of kids with spina bifida and really knows what she&rsquo;s talking about. Plus, she explains everything in a way that makes sense.</p>
<p>Any time I had concerns, Dr. Farmer was always willing to talk with me to make me feel more comfortable. I really appreciated that. If it&rsquo;s possible for other families to participate in the trial, I encourage it. I feel really lucky to have had the opportunity. The CuRe team is amazing.</p>
<p>&ndash; Testimonial submitted by Jillian Banghart, mom to Leo, who graduated from the CuRe Trial, the world&rsquo;s first spina bifida treatment combining fetal surgery with stem cells at UC Davis Health.</p>]]></content:encoded>
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         <title><![CDATA[On dialysis for 7 years, local teen gets life-changing kidney transplant]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/on-dialysis-for-7-years-local-teen-gets-life-changing-kidney-transplant/2025/07</link>
         <pubDate>Mon, 14 Jul 2025 00:00:00 -0700</pubDate>
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         <guid isPermaLink="false">https://health.ucdavis.edu/blog/patient-stories/on-dialysis-for-7-years-local-teen-gets-life-changing-kidney-transplant/2025/07</guid>
         <description><![CDATA[Justin will turn 16 in a few months and he and his mom are excited about what’s to come. “The gift he was given is amazing. It came from God, a selfless family and UC Davis. We are so grateful.”]]></description>
         <content:encoded><![CDATA[<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2025/07/images-body/justin-ramirez-doctor-mom.jpg" alt="Justin and his mom at a recent visit with pediatric nephrologist Stephanie Tram-Anh Nguyen">
<figcaption>Justin and his mom at a recent visit with his doctor, Stephanie Tram-Anh Nguyen. Now 15 years old, Justin&rsquo;s living his best life thanks to his new kidney.</figcaption>
</figure>
<p>When Justin was born, there were no indications that anything was wrong. But soon after his birth, doctors informed his mom that Justin was missing a vital organ: a kidney.</p>
<p>This condition, called unilateral renal agenesis, affects 1 in every 1,000 live births. It is not typically fatal, and many people live normal, healthy lives. However, some do develop complications. Justin was one of those people. He was flown from Reno to UC Davis Children&rsquo;s Hospital at four days old.</p>
<p>Now 15, Justin has faced a series of struggles. His first kidney transplant as a toddler failed when he was 7 years old. He has been on dialysis 10 hours a day every day since.</p>
<p>But in June 2024, Justin got the news he&rsquo;d been hoping for: there was a kidney available. He had surgery on June 16 and now, a year and several follow-up appointments/labs later, there are no signs of rejection!</p>
<p><a href="https://health.ucdavis.edu/news/headlines/on-dialysis-for-7-years-local-teen-gets-life-changing-kidney-transplant-/2025/06">Read Justin&rsquo;s full story</a></p>]]></content:encoded>
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         <title><![CDATA[UC Davis nurse’s cautionary tale of postpartum preeclampsia]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/uc-davis-nurses-cautionary-tale-of-postpartum-preeclampsia/2025/06</link>
         <pubDate>Fri, 13 Jun 2025 00:00:00 -0700</pubDate>
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         <description><![CDATA[Working at UC Davis Health, and leaning on personal experience, Kristin is passionate about sharing her cautionary tale.]]></description>
         <content:encoded><![CDATA[<p><a href="https://health.ucdavis.edu/conditions/obgyn/pregnancy-complications-management/preeclampsia">Preeclampsia</a> is a serious condition typically associated with pregnancy. It is characterized by high blood pressure, elevated levels of protein in urine (proteinuria) and headache, among other symptoms. Preeclampsia usually begins after 20 weeks of pregnancy. Left untreated, preeclampsia can lead to serious &mdash; even fatal &mdash; complications for both the mother and baby. It typically resolves with the birth of the baby.</p>
<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2025/06/images-body/kristin-apicella.jpg" alt="Kristin with her newborn in the hospital">
<figcaption></figcaption>
</figure>
<p>But Kristin Apicella had not experienced any of those symptoms during her pregnancy. Only afterward did she develop a low-grade headache. She tried to talk herself out of it.</p>
<p>&ldquo;I knew it could still happen, but it&rsquo;s very rare, especially with no other issues prior to delivery,&rdquo; Apicella said. &ldquo;As a new mom, I was so caught up with my baby. You&rsquo;re often not looking out for things for yourself.&rdquo;</p>
<p>Apicella reached for her blood pressure cuff and took a reading. Her blood pressure, which was usually low, was mildly elevated.</p>
<p>&ldquo;It wasn&rsquo;t crazy initially, but I kept monitoring my blood pressure through the day and it just kept creeping up,&rdquo; Apicella said. &ldquo;I still had a headache and some swelling in my feet, and when I took my blood pressure later that evening, it was in the severe range, so I decided to go to the ER near my home.&rdquo;</p>
<p>&ldquo;I was very tearful as I sat down with the triage nurse in the emergency room and shared what had been going on,&rdquo; Apicella said.</p>
<p>Apicella was told that her headache was likely due to lack of sleep. The triage nurse attributed her high blood pressure to stress and her swelling to fluids during labor.</p>
<p>&ldquo;As he&rsquo;s telling me this, the blood pressure cuff is just squeezing and squeezing," Apicella said. &ldquo;It can&rsquo;t get a reading because it&rsquo;s so high.&rdquo;</p>
<p>When the blood pressure machine finally completed its reading, it displayed 182/110, which is dangerously high.</p>
<p>&ldquo;He got a really shocked look on his face and then everything went really fast from there,&rdquo; Apicella said. &ldquo;I am shaking just thinking back to it.&rdquo;</p>
<p>Apicella was soon diagnosed with a rare condition nearly identical to preeclampsia, only that it occurs after giving birth. <a href="https://www.preeclampsia.org/postpartum-preeclampsia">Postpartum preeclampsia</a> usually develops within 48 hours after birth but can appear up to 6 weeks or later postpartum.</p>
<p><a href="https://health.ucdavis.edu/news/headlines/uc-davis-nurses-cautionary-tale-of-postpartum-preeclampsia-/2025/05">Read Kristin&rsquo;s full story</a></p>]]></content:encoded>
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         <title><![CDATA[Infant is first in region to get innovative stent that grows with her into adulthood]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/infant-is-first-in-region-to-get-innovative-stent-that-grows-with-her-into-adulthood/2025/05</link>
         <pubDate>Wed, 21 May 2025 00:00:00 -0700</pubDate>
         <dc:creator/>
         <category><![CDATA[Heart Health]]></category>
         <guid isPermaLink="false">https://health.ucdavis.edu/blog/patient-stories/infant-is-first-in-region-to-get-innovative-stent-that-grows-with-her-into-adulthood/2025/05</guid>
         <description><![CDATA[Lillian was born with a congenital heart condition and needed open heart surgery. Thanks to an innovative stent she now has so much energy, is more lively, and has been smiling nonstop.]]></description>
         <content:encoded><![CDATA[<p>Lillian Hodgkin was born eight weeks premature, with DiGeorge syndrome, also known as <a href="https://www.webmd.com/children/what-is-22q11.2-deletion-syndrome">22q11.2 deletion syndrome</a>, a genetic condition caused by a missing piece of chromosome 22. Patients like Lillian often have <a href="https://www.ncbi.nlm.nih.gov/books/NBK532902/">Type B interrupted aortic arch</a>, a congenital heart condition in which a portion of the aortic arch is missing and would need to be reconnected.</p>
<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2025/05/images-body/frank-ing-and-lillian-hodgkin.jpg" alt="Frank Ing, chief of pediatric cardiology, with Amanda and her daughter Lillian">
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<p>But Lillian&rsquo;s heart was even more unusual.</p>
<p>&ldquo;In my career of 33 years, I have never seen a heart anatomy like hers,&rdquo; said <a href="https://health.ucdavis.edu/children/team/32255/frank-ing-pediatric-cardiology-sacramento">Frank Ing</a>, interventional cardiologist, chief of pediatric cardiology and co-director of the <a href="https://health.ucdavis.edu/children/services/pediatric-heart-center/">UC Davis Pediatric Heart Center</a>.</p>
<p>The UC Davis pediatric heart team spent many nights, even after hours, discussing how best to proceed to ensure that Lillian would have the very best chance at life.</p>
<p>Lillian, who was hospitalized in the <a href="https://health.ucdavis.edu/children/services/NICU/">UC Davis Neonatal Intensive Care Unit</a>, needed open heart surgery to repair her heart. But because she was so small and sick, the risks were high. The team decided to wait until she was at least 5 kilograms, or 11 pounds, in size and at least past her original due date.</p>
<p>In the meantime, Ing placed flow restrictors (a device to control or limit her pulmonary blood flow) in the <a href="https://health.ucdavis.edu/children/services/pediatric-heart-center/services-and-programs/cardiac-catheterization">Cardiac Catheterization Lab</a>. He had to position the flow restrictors so that they didn&rsquo;t block the right PDA flow to the descending aorta.</p>
<p>The day after Lillian reached her original due date, pediatric cardiothoracic surgeon <a href="https://health.ucdavis.edu/surgery/team/43239/timothy-pirolli-heart-failure-surgery-congenital-heart-surgery-sacramento">Timothy Pirolli</a> repaired her interrupted aortic arch, a complicated surgery which restored her blood flow.</p>
<p>The solution turned out to be the innovative new Minima Stent System. It can be inserted with a tiny delivery system and further expand to accommodate her natural growth into adulthood.</p>
<p>The day after the procedure, Jake and Amanda were able to take Lillian back home to Placerville. The difference in Lillian has been like night and day, her parents said.</p>
<p>&ldquo;Since the procedure, she has so much energy, and is more lively. She has been smiling nonstop,&rdquo; Jake said.</p>
<p>The UC Davis team will continue to monitor her and will expand the stent as she grows. No additional heart surgeries are needed.</p>
<p>&ldquo;This team at UC Davis has been so amazing. This was probably one of the scariest things that has ever happened to us, but the UC Davis team has done amazing things for Lillian,&rdquo; Amanda said.</p>]]></content:encoded>
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         <title><![CDATA[Naturally conceived quadruplets born at UC Davis Children’s Hospital]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/naturally-conceived-quadruplets-born-at-uc-davis-childrens-hospital/2025/05</link>
         <pubDate>Mon, 05 May 2025 00:00:00 -0700</pubDate>
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         <category><![CDATA[Maternity]]></category>
         <guid isPermaLink="false">https://health.ucdavis.edu/blog/patient-stories/naturally-conceived-quadruplets-born-at-uc-davis-childrens-hospital/2025/05</guid>
         <description><![CDATA[On Nov. 14 the Delgado’s celebrated the arrival of identical girls Fern, Jane and Kit, and fraternal brother, Royal.]]></description>
         <content:encoded><![CDATA[<p>Experts say there&rsquo;s a 1-in-700,000 chance of quadruplets being conceived naturally. But the Delgado quadruplets were even more rare. There were three identical babies sharing one amniotic sack and a single baby in another. Each sack had its own placenta. That made this pregnancy one in a million.</p>
<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2025/05/images-body/delgado-quadruplets.jpg" alt="Quadruplets laying on a blanket outside">
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</figure>
<p>Kayleen was referred to UC Davis Health <a href="https://health.ucdavis.edu/obgyn/specialties/maternal-fetal-medicine/">maternal fetal medicine</a>, a multidisciplinary team at the Sacramento hospital that provides expert high-risk obstetrical care for maternal and fetal conditions, like multiples.</p>
<p>On Nov. 14, Kayleen and Zeke Delgado celebrated the arrival of their identical girls Fern, Jane and Kit, and fraternal brother, Royal. Each baby weighed under 2.5 pounds. Kit was the smallest, tipping the scale at barely 1 pound, 15 ounces.</p>
<p>The babies were rushed to the UC Davis NICU where another team of experts were standing by to receive them. Zeke stayed with the babies while Kayleen recovered from surgery. She visited when she could, every few hours.</p>
<p>&ldquo;Those first few weeks were tough,&rdquo; said Kayleen, mother of the quadruplets. &ldquo;It was an emotional time.&rdquo;</p>
<p>Yet, the couple was also comforted by the actions of the caring staff.</p>
<p>&ldquo;We knew our babies were 100% taken care of,&rdquo; Kayleen said. &ldquo;The team was so good at communicating with us. We just knew we could trust them.&rdquo;</p>
<p>The family of eight is now home and adjusting to their new normal.</p>
<p>&ldquo;We couldn&rsquo;t have asked for a better outcome,&rdquo; Kayleen said. &ldquo;UC Davis took great care of us. We are blessed and grateful.&rdquo;</p>
<p><a href="https://health.ucdavis.edu/news/headlines/naturally-conceived-quadruplets-born-at-uc-davis-childrens-hospital/2025/05">Read their full story</a></p>]]></content:encoded>
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         <title><![CDATA[Pedro’s story]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/pedros-story/2025/04</link>
         <pubDate>Tue, 15 Apr 2025 00:00:00 -0700</pubDate>
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         <guid isPermaLink="false">https://health.ucdavis.edu/blog/patient-stories/pedros-story/2025/04</guid>
         <description><![CDATA[After a routine eye exam revealed to be much more serious than vision correction, Pedro and his family turned to UC Davis doctors for answers and are forever grateful that they did.]]></description>
         <content:encoded><![CDATA[<p>In the summer of 2021, Pedro&rsquo;s life took an unexpected and challenging turn. At just 14 years old, he was diagnosed with a juvenile brain tumor, known as pilocytic astrocytoma, a type of brain tumor that developed in his optic nerves. While the tumor itself wasn&rsquo;t cancerous, it measured 3 inches and necessitated a rigorous regimen of two years of chemotherapy before any surgical intervention. The tumor caused Pedro to lose his left vision and his right peripheral sight. For a teenager with dreams of excelling as a star student athlete, this diagnosis felt like a devastating blow.</p>
<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2025/04/images-body/pedro.jpg" alt="Pedro relaxing at home" width="250">
<figcaption></figcaption>
</figure>
<p>For a moment, Pedro&rsquo;s future seemed to spiral into chaos, and his high school aspirations were overshadowed by a harsh new reality.</p>
<p>Enter the UC Davis team of doctors and nurses that not only had all the answers we needed but gave him hope of having his life back after a long and scary journey. Pedro went through two years of treatment at the UC Davis Comprehensive Cancer Center in Sacramento and three brain procedures. He is now graduating high school and dreaming of his college life, thanks to the amazing team of nurses and doctors that treated him:</p>
<ul>
<li>Neurosurgeon Dr. Edwards for lifting Pedro&rsquo;s spirits</li>
<li>Neurosurgeon Dr. Orin Bloch for performing a 6-hour brain surgery that removed as much tumor as possible, without deteriorating his vision</li>
<li>Oncologist Dr. Reuben Antony for his support</li>
<li>Ophthalmologist Dr. Allison Liu for lifting his spirits</li>
</ul>
<p>Pedro&rsquo;s vision problems were first revealed during a routine eye exam at an optometrist. As soon as he noticed that the issue was much more serious than vision correction, the doctor said the following words that Pedro and his parents will be forever grateful: &ldquo;Don&rsquo;t waste your time and go straight to UC Davis emergency care. If anyone can help your child, it&rsquo;s them.&rdquo;</p>
<p>He was absolutely right.</p>
<p>&ndash; Testimonial submitted by Carina Hollanda, Pedro&rsquo;s mother</p>]]></content:encoded>
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         <title><![CDATA[Life-saving stem cell transplant program offers a lifeline]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/life-saving-stem-cell-transplant-program-revitalized/2025/04</link>
         <pubDate>Tue, 01 Apr 2025 00:00:00 -0700</pubDate>
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         <guid isPermaLink="false">https://health.ucdavis.edu/blog/patient-stories/life-saving-stem-cell-transplant-program-revitalized/2025/04</guid>
         <description><![CDATA[Faith was diagnosed in early 2024 with acute myeloid leukemia. When she was offered the opportunity for a stem cell transplant, her family decided it was a lifeline for their daughter that they couldn’t refuse.]]></description>
         <content:encoded><![CDATA[<p>Fourteen-year-old Faith Brown was greeted with bubbles and noisemakers from exuberant doctors, nurses, and staff as she and her family walked through the pediatrics unit for the last time.</p>
<p>Faith had one final job to do before leaving <a href="https://health.ucdavis.edu/children/">UC Davis Children&rsquo;s Hospital</a>: She needed to ring the bell!</p>
<p>A brass bell hangs on the wall in the hallway of the unit. Patients ring it when they&rsquo;ve finished treatment for cancer or a transplant. In Faith&rsquo;s case, it was a stem cell transplant to treat a type of leukemia.</p>
<p>A nurse held a banner that said, &ldquo;Way to go!&rdquo; It was signed by her care team. Another sign read, &ldquo;We are so proud of you.&rdquo;</p>
<p>Faith grabbed the rope and rang the bell multiple times with a bright clang.</p>
<p>&ldquo;Three cheers for the best feeling in the world,&rdquo; shouted Faith&rsquo;s mother, Angie Evans, which was met with more clapping and cheering.</p>
<p>The moment was made possible by the revitalized UC Davis pediatric stem cell transplant (also known as a bone marrow transplant) program. UC Davis Health is the only provider of this specialized service for children in the Sacramento area.</p>
<p>It is led by <a href="https://health.ucdavis.edu/pediatrics/team/43347/lisa-madden">Lisa Madden</a>, a pediatric hematologist and oncologist at <a href="https://health.ucdavis.edu/cancer/">UC Davis Comprehensive Cancer Center</a>, who has expertise in the fields of stem cell transplant and cellular therapies.</p>
<p>&ldquo;This is an exciting time to be in the field of stem cell transplant. We are constantly expanding the diseases for which we can offer transplant, sometimes using modalities that are less toxic to the patient,&rdquo; Madden said. &ldquo;Stem cell transplant is a procedure that is lifesaving. In the case of cancer, this is more immediately obvious. But stem cell transplant can be used to treat other lethal disorders in which there is a slow progression to organ failure, and in which lifespan is otherwise shortened and often painful. Diseases in this category include sickle cell disease and thalassemia, some metabolic disorders like Hurler Syndrome from which patients otherwise don&rsquo;t live past early childhood, and also some immune disorders from which patients get constant infections. When things go well, they are cured, they no longer have to come to clinic constantly for things like blood transfusions. It can truly change their lives.&rdquo;</p>
<p><a href="https://health.ucdavis.edu/news/headlines/life-saving-stem-cell-transplant-program-revitalized-/2024/09">Read Faith&rsquo;s full story</a></p>]]></content:encoded>
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         <title><![CDATA[We love to hear from families after their care experience]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/jamies-story/2025/03</link>
         <pubDate>Tue, 11 Mar 2025 00:00:00 -0700</pubDate>
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         <guid isPermaLink="false">https://health.ucdavis.edu/blog/patient-stories/jamies-story/2025/03</guid>
         <description><![CDATA[After being diagnosed with hyperlactation, a mother expresses gratitude after receiving unique lactation support and raises awareness about becoming a milk donor for the UC Health Milk Bank.]]></description>
         <content:encoded><![CDATA[<p>For the last couple of months I&rsquo;ve been struggling with breastfeeding and have now officially been diagnosed with hyperlactation. This basically means that my body, for some reason, thinks it needs to feed multiple babies. While that sounds great, and while I am beyond grateful to be able to feed my baby, it has been frustrating, stressful, and downright painful at times.</p>
<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2025/03/images-body/baby-surrounded-by-milk-bag-donations.jpg" alt="Baby surrounded by milk bag donations">
<figcaption></figcaption>
</figure>
<p>I had heard of moms underproducing milk (and I know how stressful that is too, as it took a few days for my milk to come in), but I had never heard of anyone overproducing, so I was confused and disturbed by the changes I was experiencing when my milk did come in. The pain regularly woke me up at night, and the fast flow of milk caused my baby to cough, choke, and cry in frustration because he was hungry but couldn&rsquo;t drink. I spoke with the wonderful UC Davis lactation consultants multiple times a week to try to figure out what was happening and manage it.</p>
<p>One time when pumping, I produced 250 mLs. Becca told me that was about 4 times what my baby needed at that age. After that, I completely stopped pumping (to prevent further stimulating production), I tried using ice packs, different nursing positions, block feeding, and even hand-expressing before feeds to relieve the pressure, but nothing helped. This also meant I couldn&rsquo;t let my husband bottle feed (though he was willing and wanted to help shoulder some of the load), so I have been doing 100% of the feedings, and now my baby absolutely refuses to take a bottle.</p>
<p>I was finally referred to a doctor who specializes in lactation. Under her guidance, I have tried multiple medications and supplements which helped to reduce my production to an extent, but I am still basically producing enough for twins. I am in constant fear that the fast flow will cause my baby to develop an aversion to nursing, so fingers crossed this next medication helps regulate my production.</p>
<p>All that said, there is a silver lining to all this pain, frustration and stress. Every time my baby feeds, I collect the milk from the side he isn&rsquo;t nursing on (because apparently my body thinks there&rsquo;s a baby on that side too), and I have now saved almost 20 liters (over 5 gallons) of milk in our freezer. I jumped through the necessary hoops and have been approved as an official milk donor for the UC Health Milk Bank. I am happy to say I just donated 13.5 liters of this milk so that it can help other babies in need at UC hospitals across the state.</p>
<p>I hope that by sharing this, I can raise some awareness about hyperlactation and how difficult overproducing milk can be. I also hope to encourage anyone who may be overproducing to consider donating to your local milk bank or sharing with other local moms/babies in need. I am so grateful for the support I have been receiving from the UC Davis lactation consultants and the UC Davis breastfeeding support group, and encourage other moms to reach out to them early and often with any issues you may have.</p>
<p>&ndash; Testimonial submitted by Jamie Nakatani</p>]]></content:encoded>
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         <title><![CDATA[Lodi boy battles cancer with support from UC Davis and local community]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/lodi-boy-battles-cancer-with-support-from-uc-davis-and-local-community/2025/02</link>
         <pubDate>Tue, 25 Feb 2025 00:00:00 -0800</pubDate>
         <dc:creator/>
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         <guid isPermaLink="false">https://health.ucdavis.edu/blog/patient-stories/lodi-boy-battles-cancer-with-support-from-uc-davis-and-local-community/2025/02</guid>
         <description><![CDATA[“Not only do we have support, love and good care from UC Davis, our community continues to rally around us.”]]></description>
         <content:encoded><![CDATA[<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2025/02/images-body/aj-and-marcio-malogolowkin.jpg" alt="AJ and Marcio Malogolowkin, chief of pediatric hematology and oncology, during a follow-up visit" width="250">
<figcaption>Seeing &ldquo;Dr. M&rdquo; on treatment days was a highlight for the Moreno family.</figcaption>
</figure>
<p>After a visit to the ER for an enlarged stomach, AJ Moreno was diagnosed with a stage 4 Wilms tumor, a form of pediatric kidney cancer. The tumor had spread to his lungs, and surgery wasn&rsquo;t an option. After six weeks of chemotherapy, the tumor shrunk enough for a successful surgery to remove it and his left kidney, followed by more chemo and radiation.</p>
<p>The Lodi community supported AJ and his family through it all.</p>
<p>&ldquo;Landing on the doorstep of UC Davis was probably one of the biggest blessings throughout all of this,&rdquo; Christina, AJ&rsquo;s mother, said. &ldquo;And not only do we have support, love and good care from UC Davis, our community continues to rally around us.&rdquo;</p>
<p>Now 8 years old, AJ is back to doing what he loves &mdash; excelling in soccer, basketball, and baseball!</p>
<p><a href="https://health.ucdavis.edu/news/headlines/lodi-boy-battles-cancer-with-support-from-uc-davis-and-local-community-/2025/02">Learn more about AJ&rsquo;s journey</a></p>]]></content:encoded>
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         <title><![CDATA[Baby born at 22 weeks gestation, saved by Sacramento firefighters and UC Davis Health]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/baby-born-at-22-weeks-gestation-saved-by-sacramento-firefighters-and-uc-davis-health/2025/01</link>
         <pubDate>Mon, 13 Jan 2025 00:00:00 -0800</pubDate>
         <dc:creator/>
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         <guid isPermaLink="false">https://health.ucdavis.edu/blog/patient-stories/baby-born-at-22-weeks-gestation-saved-by-sacramento-firefighters-and-uc-davis-health/2025/01</guid>
         <description><![CDATA[Jazmin’s baby girl Daleyza was 1 pound, 1 ounce at birth. Thanks to the care she received, Daleyza was nearly 8 pounds when she was discharged after spending 146 days in the NICU.]]></description>
         <content:encoded><![CDATA[<p>Roughly 50 miles separate Stockton from UC Davis Children&rsquo;s Hospital in Sacramento, mostly along Highway 99. But the route felt much further one fateful night in June for Jazmin Quijano.</p>
<p>She was 22 weeks and 3 days pregnant and experiencing back labor. She went to her local hospital and was told that they weren&rsquo;t equipped to care for a baby that premature if she were to deliver.</p>
<p>UC Davis Children&rsquo;s Hospital was the nearest hospital that could handle such an early delivery. Its Level IV Neonatal Intensive Care Unit, the highest level available, cares for premature babies as young as 22 weeks gestation.</p>
<p>It was after midnight when she and her partner packed up their blue Honda to drive north to UC Davis Children&rsquo;s Hospital.</p>
<p>Just over a half hour into the drive, she wondered if they would even make it. Her contractions were getting stronger and more frequent.</p>
<p>&ldquo;By the time we got to Elk Grove, I said, &lsquo;We need to call 9-1-1,&rsquo;&rdquo; remembered Jazmin. Her partner worried they might not get the immediate care they needed and would be left waiting on the side of the road.</p>
<p>They soldiered on toward the hospital &mdash; and almost made it.</p>
<p>Near the 12th Avenue freeway exit in South Sacramento, Jazmin felt a rush of warm fluid.</p>
<p>Their baby girl was born in the front passenger seat.</p>
<h2>Firefighters to the rescue</h2>
<p>The baby was still in its amniotic sac, when Jazmin called 9-1-1 and connected with the emergency dispatcher who assured her that first responders were on their way. The dispatcher then walked her through the steps to break the sac and perform CPR on her baby. Jazmin, a mother for the first time, wrapped her baby in a sweatshirt to keep her warm.</p>
<p>Of all the medical emergencies that Sacramento Fire Department Engine 6 responds to, this one stood out.</p>
<p>&ldquo;The call came in at 2 a.m. Most of us have had labor and delivery calls, but not for someone this premature,&rdquo; said Engine 6 Capt. David Fike, who was called to the scene that morning.</p>
<p>Firefighter Eric Chin said it was extremely stressful once they realized the nature of the call.</p>
<p>Five firefighters arrived within five minutes.</p>
<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2025/01/images-body/five-firefighters.jpg" alt="Engine 6 firefighters">
<figcaption>The Engine 6 firefighters who responded. From left to right: Eric Chin, Lukas Troutman, Jeffrey Switkowski, Adrienne Bisharat and Capt. David Fike. Photo credit: Wendy Aguilar, Sacramento Fire.</figcaption>
</figure>
<p>Chin opened the car&rsquo;s front passenger door and Jazmin transferred the tiny baby, about the size of a pear, into his hands.</p>
<p>Once in the ambulance, the team continued to perform CPR, gently using just one finger on the baby&rsquo;s delicate chest. They cranked up the heat to keep the ambulance warm. They dried the baby using towels and absorbent pads.</p>
<p>The firefighters called ahead to the Neonatal Intensive Care Unit team at UC Davis Children&rsquo;s Hospital so they were prepared to receive the patient when they arrived.</p>
<p>&ldquo;When EMS brought the baby to our Emergency Department, the baby had a good temperature and a good chest rise,&rdquo; said Janelle Beall, UC Davis neonatal nurse manager.</p>
<p>The Emergency Department and neonatology teams took over resuscitation efforts. The baby was then transferred to the NICU, where the staff praised the life-saving work of the firefighters.</p>
<p><a href="https://health.ucdavis.edu/news/headlines/baby-born-at-22-weeks-gestation-saved-by-sacramento-firefighters-and-uc-davis-health-/2024/12">Read Jazmin&rsquo;s full story</a></p>]]></content:encoded>
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         <title><![CDATA[17-year-old Roseville girl nearly dies of ‘walking pneumonia’]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/17-year-old-roseville-girl-nearly-dies-of-walking-pneumonia/2024/11</link>
         <pubDate>Tue, 26 Nov 2024 00:00:00 -0800</pubDate>
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         <description><![CDATA[Teen reunites with UC Davis Health team that saved her life.]]></description>
         <content:encoded><![CDATA[<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2024/11/images-body/callie-on-ecmo.jpg" alt="Callie in the hospital on ECMO, a heart-lung bypass machine">
<figcaption>A tilt bed took the pressure off of Callie&rsquo;s lungs while she was on ECMO.</figcaption>
</figure>
<p>In August, 17-year-old Callie was hospitalized at UC Davis Children&rsquo;s Hospital for a cold that turned into walking pneumonia, which developed into a life-threatening lung injury. She was placed on ECMO, a heart-lung bypass machine. Then another complication: Callie was getting her blood drawn daily and her blood was clotting before it got to the lab. She was diagnosed with cold agglutinin disease, a rare autoimmune disease in which the body&rsquo;s immune system attacks red blood cells.</p>
<p>Callie&rsquo;s mother, Cara Cosentino, calls Callie&rsquo;s recovery a miracle. She credits a lot of prayers and her daughter&rsquo;s care team, who got her through the toughest days. &ldquo;The doctors, nurses, the whole team were amazing. We just can&rsquo;t thank them enough. They saved my baby,&rdquo; she said.</p>
<p>Callie and her mom returned to the hospital to show the team how far she has come. &ldquo;So often, our patients leave the ICU, and we do not get to see them again,&rdquo; said assistant nurse manager Laura Kenny.</p>
<p><a href="https://health.ucdavis.edu/children/news/headlines/17-year-old-roseville-girl-nearly-dies-of-walking-pneumonia/2024/11">Read Callie&rsquo;s full story</a></p>]]></content:encoded>
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         <title><![CDATA[UC Davis Children’s Hospital provides life-saving care to Lodi baby]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/uc-davis-childrens-hospital-provides-life-saving-care-to-lodi-baby/2024/11</link>
         <pubDate>Tue, 05 Nov 2024 00:00:00 -0800</pubDate>
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         <description><![CDATA[After Ruthie was diagnosed with Down syndrome and a heart defect, a multidisciplinary team helps her soar.]]></description>
         <content:encoded><![CDATA[<p>Diagnosed with Down syndrome and a heart defect, Ruthie&rsquo;s family turned to the <a href="https://health.ucdavis.edu/children/services/pediatric-heart-center/">UC Davis Pediatric Heart Center</a> and <a href="https://health.ucdavis.edu/mind-institute/">MIND Institute</a> for help.</p>
<p>&ldquo;From where we started and all the worries we had to where we are now is like a dream,&rdquo; said Katy, Ruthie&rsquo;s mom. &ldquo;I would tell other parents to trust the experts. You are in good hands. We certainly were.&rdquo;</p>
<p><img src="/media-resources/contenthub/post/internet/patient-stories/2024/11/images-body/ruthie.jpg" width="500" height="220" alt="Image 1: Ruthie wears backpack, standing in front of playground. Image 2: Ruthie plays in a ballpen with her brother. Image 3: Ruthie sits on a bench, holding a sign that says &ldquo;First day.&rdquo;"></p>
<p><a href="https://health.ucdavis.edu/news/headlines/uc-davis-childrens-hospital-provides-life-saving-care-to-lodi-baby/2024/10">Read Ruthie&rsquo;s full story</a></p>]]></content:encoded>
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         <title><![CDATA[Unique support from a respiratory therapist helps patient, mother with CPAP care]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/unique-support-from-a-respiratory-therapist-helps-patient-mother-with-cpap-care/2024/10</link>
         <pubDate>Wed, 09 Oct 2024 00:00:00 -0700</pubDate>
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         <description><![CDATA[After Eduardo was struggling with wearing his CPAP, his respiratory therapist helps him make a breakthrough.]]></description>
         <content:encoded><![CDATA[<p>&ldquo;Eduardo has been coming to the CPAP clinic for the last year. CPAP compliance has been a struggle for him and a source of relationship contention between him and his mom.</p>
<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2024/10/images-body/audrey-and-eduardo.jpg" alt="UC Davis respiratory therapist Audrey and patient Eduardo wearing his CPAP mask">
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</figure>
<p>He would often take the mask off after two to three hours, claiming he did not know when or how it came off. Some nights, he refused to use CPAP even when his mom reminded him to put his mask on.</p>
<p>During clinic appointments the hum of mother/son tension was noticeable in the background. After a year of meeting, tweaking CPAP settings, changing masks, we were still in the same place with marginal compliance except that now the hum of relationship tension had become a roar.</p>
<p>We made a deal. If Eduardo used his CPAP faithfully on school nights, he could take the weekends off. If he did not, he would owe CPAP time on the weekends. Mom also agreed to allow Eduardo to earn gaming time for CPAP compliance.</p>
<p>Finally, a breakthrough!</p>
<p>At CPAP clinic a month later, I began with my standard greeting, &lsquo;Hey, Eduardo, how&rsquo;s CPAP going?&rsquo; I wasn&rsquo;t even able to finish my sentence before Eduardo, with a proud smile on his face, blurted out, &lsquo;I&rsquo;m wearing it every night!&rsquo; Surprised, I looked over at mom. She smiled and nodded her head in confirmation. We talked a bit more and agreed to meet one more time to develop a summer plan. The most striking part of the visit was the absence of the mother/son tension in the background. In its place was a comfortable quiet.&rdquo;</p>
<p>&ndash; Testimonial submitted by Audrey Chikalla, UC Davis respiratory therapist</p>]]></content:encoded>
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         <title><![CDATA[CuRe trial provides family hope for a better future]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/cure-trial-provides-family-hope-for-a-better-future/2024/09</link>
         <pubDate>Tue, 10 Sep 2024 00:00:00 -0700</pubDate>
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         <description><![CDATA[“We couldn’t be more full of gratitude for our little miracle boy and everyone at UC Davis who has made his miracle possible.”]]></description>
         <content:encoded><![CDATA[<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2024/09/images-body/Nixon.jpg" alt="Nixon walking with his push cart">
<figcaption></figcaption>
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<p>When Nixon was diagnosed with spina bifida, we began searching high and low for anything that would shed light on his condition and provide hope for a better future. That hope presented itself when we stumbled across a local news article discussing the <a href="https://health.ucdavis.edu/children/cure-trial/">CuRe trial</a>.</p>
<p>This led us to begin researching everything we could on this trial. Soon enough we met with professional and medical staff at UC Davis and discovered that we absolutely wanted in on the CuRe trial. As time went on, we realized just how special this trial was and what made it so special were the doctors, medical staff, and professional staff at UC Davis. We saw the vision for what life could potentially be for those with spina bifida and recognized the life&rsquo;s work that has culminated into this trial.</p>
<p>Fast forward nearly two years later and Nixon is making remarkable strides. He is developing cognitively, emotionally and physically. Nixon has been making great progress as he crawls all around the house and has begun taking steps with the assistance of his little push cart (it might be the cutest thing you&rsquo;ve ever seen)! We couldn&rsquo;t be more full of gratitude for our little miracle boy and everyone at UC Davis who has made his miracle possible.</p>
<p>&ndash; Testimonial submitted by Lindsey, Nixon&rsquo;s mother</p>]]></content:encoded>
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         <title><![CDATA[‘Nothing holds him back’: Child born with 2 very rare conditions gets life-saving care]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/nothing-holds-him-back-child-born-with-2-very-rare-conditions-gets-life-saving-care/2024/07</link>
         <pubDate>Thu, 11 Jul 2024 00:00:00 -0700</pubDate>
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         <description><![CDATA[17 surgeries later, 6-year-old Shine runs on prosthetic legs and Paralympic dreams.]]></description>
         <content:encoded><![CDATA[<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2024/07/images-body/shine-running.jpg" alt="Shine running outside">
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</figure>
<p>Shine is a 6-year-old boy who was born with two rare conditions. He received life-saving care at UC Davis Children&rsquo;s Hospital, including 14 surgeries. His surgeries and prosthetic fitting have allowed Shine to shine in every way! He&rsquo;s taken on running, surfing, fencing, biking and so much more. He even has dreams of becoming a Paralympian.</p>
<p><a href="https://health.ucdavis.edu/news/headlines/nothing-holds-him-back-child-born-with-2-very-rare-conditions-gets-lifesaving-care/2024/02">Read Shine&rsquo;s full story</a></p>]]></content:encoded>
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         <title><![CDATA[Local girl’s cardiac care both life-saving and life-changing]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/local-girls-cardiac-care-both-lifesaving-and-life-changing/2024/06</link>
         <pubDate>Mon, 24 Jun 2024 00:00:00 -0700</pubDate>
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         <description><![CDATA[Diagnosed with aortopulmonary window and supravalvular aortic stenosis, local girl gives new meaning to ‘big hearted.’]]></description>
         <content:encoded><![CDATA[<p>Providing hope and support to &ldquo;the littlest heart patients of all&rdquo; and their families is what <a href="https://mendedhearts.org/about-us/about-mended-little-hearts/">Mended Little Hearts</a> is all about. And who better to create awareness and bring a strong voice for congenital heart defects than nurse, Ka Yang, and her daughter, Annabelle Lee. They know first-hand how important that kind of support can be.</p>
<p>When Yang gave birth to her daughter in November of 2009, the first-time mom was excited to take her healthy newborn home. But by the time of Annabelle&rsquo;s well-child visit at 2 months old, Yang was worried. Her daughter seemed to be breathing heavily.</p>
<p>&ldquo;I was a brand-new mom, but mother&rsquo;s intuition told me Annabelle was not acting normally. Her doctor at the UC Davis clinic agreed to run some tests,&rdquo; Yang said. &ldquo;I am so glad she listened to me.&rdquo;</p>
<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2024/06/images-body/annabelle-collage.jpg" alt="Image 1: Annabelle shows scar from heart surgery. Image 2: Annabelle sits on bench wearing blue shirt that says &ldquo;Heart of gold.&rdquo; Image 3: Annabelle jumps into the air.">
<figcaption>Annabelle &ndash; the girl with the big heart &ndash; through the years.</figcaption>
</figure>
<p>A chest X-ray and an electrocardiogram (EKG) revealed that the infant was in congestive heart failure. She was whisked from the doctor&rsquo;s office to <a href="https://health.ucdavis.edu/children/">UC Davis Children&rsquo;s Hospital</a> by ambulance.</p>
<p>&ldquo;She was admitted immediately. My world became a blur,&rdquo; Yang said. &ldquo;I was in survival mode and so was my daughter.&rdquo;</p>
<p>Annabelle underwent open heart surgery at UC Davis Children&rsquo;s Hospital, home of the <a href="https://health.ucdavis.edu/children/services/pediatric-heart-center/">Pediatric Heart Center</a> and the <a href="https://health.ucdavis.edu/children/services/childrens-surgery-center/">Children&rsquo;s Surgery Center</a>. Her rare defect, referred to as <a href="https://medlineplus.gov/ency/article/007319.htm">aortopulmonary window</a>, is a hole between the blood vessel that feeds the heart (the aorta) and the blood vessel going to the lungs (pulmonary artery). Because of this hole, blood from the aorta rushes into the pulmonary artery, and too much blood flows through the lungs. Aortopulmonary window accounts for less than 1% of all congenital heart defects.</p>
<p>Annabelle also had <a href="https://www.heart.org/en/health-topics/congenital-heart-defects/about-congenital-heart-defects/pulmonary-valve-stenosis">pulmonary stenosis</a>, where the pulmonary valve &ndash; which allows blood flow from the right ventricle to the lung &ndash; narrows and causes the right ventricle to pump harder to get blood past the blockage. These combined defects contributed to secondary <a href="https://medlineplus.gov/pulmonaryhypertension.html">pulmonary hypertension</a>, which happens when the pressure in the blood vessels leading from the heart to the lungs is too high.</p>
<p>According to UC Davis Children&rsquo;s Hospital pediatric cardiothoracic surgeon, <a href="https://physicians.ucdavis.edu/medicalcenter/details/849/gary-raff-pediatric_surgery-surgery_-_cardiothoracic-surgery_-_thoracic-sacramento">Gary Raff</a>, children with aortopulmonary window can have a delayed diagnosis.</p>
<p>&ldquo;This results in too much blood entering the lungs at high pressure and can result in early pulmonary vascular disease that can make surgical care challenging,&rdquo; Raff said. &ldquo;We work closely with our multidisciplinary pediatric pulmonary hypertension service to manage children like Annabelle.&rdquo;</p>
<p><a href="https://health.ucdavis.edu/news/features/local-girls-cardiac-care-both-lifesaving-and-life-changing/2023/02">Read Annabelle&rsquo;s full story</a></p>]]></content:encoded>
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         <title><![CDATA[Surgeons use collarbone to create new upper arm for young cancer patient]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/surgeons-use-collarbone-to-create-new-upper-arm-for-young-cancer-patient-/2024/05</link>
         <pubDate>Thu, 30 May 2024 00:00:00 -0700</pubDate>
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         <description><![CDATA[Exceptionally rare procedure helps 9-year-old avoid amputation after she was diagnosed with osteosarcoma.]]></description>
         <content:encoded><![CDATA[<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2024/05/images-body/sydney-in-the-hospital.jpg" alt="Sydney in the hospital" width="300">
<figcaption></figcaption>
</figure>
<p>When Sydney was diagnosed with an aggressive osteosarcoma, a type of bone cancer which tends to occur in teenagers and young adults, she had several treatment options. Her family put their trust in UC Davis pediatric orthopedic surgeon Dr. R. Lor Randall and an uncommon surgery technique that would make a new upper arm using her collarbone.</p>
<p>&ldquo;We found out that people come from all over the U.S. to see Dr. Randall for surgery,&rdquo; said Sydney&rsquo;s mom Kacy Engle. &ldquo;We totally trusted him, 100%. We put our child in his hands knowing how serious he is about what he does.&rdquo;</p>
<p><a href="https://health.ucdavis.edu/children/news/headlines/surgeons-use-collarbone-to-create-new-upper-arm-for-young-cancer-patient-/2024/04">Read Sydney&rsquo;s full story</a></p>]]></content:encoded>
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         <title><![CDATA[UC Davis doctor first in the world to implant a retrievable leadless pacemaker in a child]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/uc-davis-doctor-first-in-the-world-to-implant-a-retrievable-leadless-pacemaker-in-a-child/2024/05</link>
         <pubDate>Tue, 14 May 2024 00:00:00 -0700</pubDate>
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         <category><![CDATA[Heart Health]]></category>
         <guid isPermaLink="false">https://health.ucdavis.edu/blog/patient-stories/uc-davis-doctor-first-in-the-world-to-implant-a-retrievable-leadless-pacemaker-in-a-child/2024/05</guid>
         <description><![CDATA[“It’s amazing how small the device is. It’s like the size of one AA battery,” said Heather Hayes, whose son Matias was the first to have the procedure done.]]></description>
         <content:encoded><![CDATA[<p>Matias had a very slow heart rate of about 30 beats per minute. His skin was pale, and he had very little energy.</p>
<p><a href="https://health.ucdavis.edu/children/team/43007/daniel-cortez-electrophysiology-cardiology-congenital-anomalies-pediatric-cardiology-pediatrics-sacramento">Dr. Dan Cortez</a> implanted a retrievable leadless pacemaker in Matias, through the child&rsquo;s internal jugular vein in the Cardiac Catheterization Lab.</p>
<p>&ldquo;It&rsquo;s amazing how small the device is. It&rsquo;s like the size of one AA battery,&rdquo; said Heather Hayes, whose son Matias was the first to have the procedure done. &ldquo;My son now wears a medical bracelet to let people know he has a pacemaker because you would never know otherwise. No scars and no sign of it.&rdquo;</p>
<p>After the procedure, Matias&rsquo;s heart returned to a normal resting rate, and he had color back in his skin. He was more alert at school.</p>
<p>&ldquo;His teacher at school noticed the improvement instantly,&rdquo; said Hayes. &ldquo;It&rsquo;s been a blessing. Dr. Cortez is the best. He saved my son.&rdquo;</p>
<p>The pacemaker is expected to last through childhood and into adulthood, but if the battery needs to be replaced, this retrievable leadless pacemaker will be easy to remove.</p>
<p><a href="https://health.ucdavis.edu/children/news/headlines/uc-davis-doctor-first-in-the-world-to-implant-a-retrievable-leadless-pacemaker-in-a-child/2023/01">Read more</a></p>]]></content:encoded>
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         <title><![CDATA[Local teen walks again after tubing accident, thanks to UC Davis Children’s Hospital]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/local-teen-walks-again-after-tubing-accident-thanks-to-uc-davis-childrens-hospital/2024/04</link>
         <pubDate>Fri, 26 Apr 2024 00:00:00 -0700</pubDate>
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         <description><![CDATA[Julia was a talented gymnast. She had just taken first place at a regional competition and her future looked bright. On a day out with friends, that future changed dramatically when she had a water tubing accident.]]></description>
         <content:encoded><![CDATA[<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2024/04/images-body/julia-at-her-gymnastics-championship.jpg" alt="Julia after winning her gymnastics championship" width="380" height="233">
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<p>Julia Lynn was a talented gymnast. She had just taken first place at a regional gymnastics competition and her future looked bright. On a day out with friends in June 2022, that future changed dramatically when Julia went out water tubing, an activity where participants ride an inner tube pulled behind a boat by a tow rope.</p>
<p>The fun outing at Shasta Lake turned scary when two tubes being pulled behind the same boat collided. One tube landed on the other, trapping the 15-year-old. When the tubes hit another wake, Julia was freed but was thrown into the water. The accident left her without feeling on the left side of her body.</p>
<p>&ldquo;At first, I didn&rsquo;t really realize I was hurt. But then my arm got super swollen,&rdquo; Julia said. &ldquo;It turned blue and got really cold. I knew that was not normal.&rdquo;</p>
<figure class="image img-left"><img src="/media-resources/contenthub/post/internet/patient-stories/2024/04/images-body/julia-in-recovery.jpg" alt="Julia in her wheelchair during recovery">
<figcaption></figcaption>
</figure>
<p>When she arrived at the local hospital near her home in Cottonwood, in Shasta County, Julia couldn&rsquo;t feel anything as doctors poked her. No response to the hot and cold test either. Julia&rsquo;s mom Melissa Lynn recalls the doctor saying it might be a spinal cord injury.</p>
<p>&ldquo;I thought it was a pinched nerve or something,&rdquo; Melissa recalled. &ldquo;I wasn&rsquo;t expecting that.&rdquo;</p>
<p>The next thing the Lynns knew, Julia was being transported to <a href="https://health.ucdavis.edu/children/">UC Davis Children&rsquo;s Hospital</a> for critical care. This was possible thanks to <a href="https://health.ucdavis.edu/children/partnerships-affiliations/">patient-centered partnerships</a> with more than two dozen hospitals across Northern California, as UC Davis Health works to improve access to care across the region.</p>
<p>&ldquo;I flew in a helicopter to the airport and by the time we boarded the plane to Sacramento, I had no feeling in my leg at all,&rdquo; Julia said.</p>
<p><a href="https://health.ucdavis.edu/news/features/local-teen-walks-again-after-tubing-accident-thanks-to-uc-davis-childrens-hospital/2023/10">Read Julia&rsquo;s full story</a></p>]]></content:encoded>
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         <title><![CDATA[Local fetal and cardiac surgery team saves Folsom baby with heart defect]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/local-fetal-and-cardiac-surgery-team-saves-folsom-baby-with-heart-defect/2024/04</link>
         <pubDate>Thu, 04 Apr 2024 00:00:00 -0700</pubDate>
         <dc:creator/>
         <category><![CDATA[Surgery]]></category>
         <guid isPermaLink="false">https://health.ucdavis.edu/blog/patient-stories/local-fetal-and-cardiac-surgery-team-saves-folsom-baby-with-heart-defect/2024/04</guid>
         <description><![CDATA[When a routine ultrasound at 20 weeks revealed a potential heart defect in their developing baby, Stephanie and Travis Dover of Folsom were caught off guard.]]></description>
         <content:encoded><![CDATA[<p>When a routine ultrasound at 20 weeks revealed a potential heart defect in their developing baby, Stephanie and Travis Dover of Folsom were caught off guard. As the parents of six other children, including three who were born at home without issue, they had not faced something like this.</p>
<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2024/04/images-body/stephanie-dover.jpg" alt="Stephanie Dover pregnant with her seventh child, Vincent">
<figcaption>Stephanie Dover pregnant with her seventh child, Vincent.</figcaption>
</figure>
<p>&ldquo;I&rsquo;m an ultrasound technician and I was not really worried at first. We often request additional pictures,&rdquo; Travis Dover said. &ldquo;But when I got the report, I didn&rsquo;t believe it. I was like, &lsquo;Oh my goodness. Really? This condition is like 1 in 3,000 to 4,000.&rsquo;&rdquo;</p>
<p>The ultrasound showed it was likely <a href="https://www.cdc.gov/heart-defects/about/d-tga.html?CDC_AAref_Val=https://www.cdc.gov/ncbddd/heartdefects/d-tga.html">d-TGA</a>, Dextro-Transposition of the Great Arteries. This birth defect involves the two main arteries carrying blood out of the heart. In cases of d-TGA, the arteries are switched in position, or &ldquo;transposed&rdquo;, which leaves the heart without oxygenated blood. Babies with d-TGA need surgery within days of birth.</p>
<p>Since the Dovers&rsquo; health care provider was not equipped to address the complex heart condition, the couple was referred to a health care provider in the Bay Area. It was a hardship finding child care for their children, who range in age from 2 to 12, but they found a babysitter. Then the couple made the initial two-hour trip for a <a href="https://nam12.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.heart.org%2Fen%2Fhealth-topics%2Fcongenital-heart-defects%2Fsymptoms--diagnosis-of-congenital-heart-defects%2Ffetal-echocardiogram-test&amp;data=05%7C01%7Cjajacobs%40ucdavis.edu%7C61976235f19344b65b3408dbc14833d6%7Ca8046f6466c04f009046c8daf92ff62b%7C0%7C0%7C638316288115081077%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&amp;sdata=lo%2BBm%2FdcA6WuS199NjhbOB%2FHywumj3Vv7wOGvastVDk%3D&amp;reserved=0">fetal echocardiogram</a> &mdash; a more detailed ultrasound of the baby&rsquo;s heart.</p>
<p>A few more tests were run and then the reality of the situation set in. Their developing baby had a confirmed d-TGA diagnosis and needed treatment and they were more than two hours away from their home in Folsom.</p>
<p>&ldquo;We immediately started trying to figure out where all of us could stay,&rdquo; Travis Dover added. &ldquo;We also needed someone to watch the kids while we were at the hospital. But our friends who could watch the kids are here. Our support system is here, not in the Bay Area.&rdquo;</p>
<p>&ldquo;The thought of having to travel outside of the area with all our kids was overwhelming,&rdquo; Stephanie Dover added. &ldquo;We did not know what we were going to do.&rdquo;</p>
<figure class="image img-left"><img src="/media-resources/contenthub/post/internet/patient-stories/2024/04/images-body/travis-dover-and-vincent.jpg" alt="Travis Dover and his son Vincent">
<figcaption></figcaption>
</figure>
<p>The logistics were daunting, and their baby would likely spend weeks in the hospital after delivery. How could they be away from home that long? The Dovers&rsquo; had just six short weeks to figure it out.</p>
<p>Stephanie made the initial call to <a href="https://health.ucdavis.edu/children/">UC Davis Children&rsquo;s Hospital</a> the week of Feb. 27, 2023. She was due in April. Time was ticking.</p>
<p>Specifically, she sought help from the <a href="https://health.ucdavis.edu/children/services/fetal-care-treatment-center/">UC Davis Fetal Care and Treatment Center</a>. As the first comprehensive multidisciplinary fetal diagnosis and therapy center in inland Northern Californi]]></content:encoded>
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         <title><![CDATA[Mom’s ‘gut feeling’ leads to daughter’s cancer diagnosis, treatment at UC Davis]]></title>
         <link>https://health.ucdavis.edu/blog/patient-stories/moms-gut-feeling-leads-to-daughters-cancer-diagnosis-treatment-at-uc-davis/2024/03</link>
         <pubDate>Mon, 18 Mar 2024 00:00:00 -0700</pubDate>
         <dc:creator/>
         <category><![CDATA[Cancer Care]]></category>
         <guid isPermaLink="false">https://health.ucdavis.edu/blog/patient-stories/moms-gut-feeling-leads-to-daughters-cancer-diagnosis-treatment-at-uc-davis/2024/03</guid>
         <description><![CDATA[Peyton, a sassy, spirited girl who had endless energy was just not herself, so her mom took the then 3-year-old into the local urgent care clinic near their home and insisted on a blood test.]]></description>
         <content:encoded><![CDATA[<figure class="image img-right"><img src="/media-resources/contenthub/post/internet/patient-stories/2024/03/images-body/peyton-and-her-mom.jpg" alt="Peyton and her mom during the holidays">
<figcaption>Peyton is now 7 years old. She&rsquo;s been cancer free for two years.</figcaption>
</figure>
<p>In the summer of 2019, Dianna Cooley started noticing signs of illness in her daughter, Peyton Cooley, who was producing low-grade fevers. After multiple trips to urgent care and their provider sending them home with antibiotics which seemed to show no signs of improvement, Cooley walked herself and her daughter through our hospital doors.</p>
<p>Dianna&rsquo;s gut feeling that something was wrong with Peyton was swiftly reinforced by a diagnosis from our children&rsquo;s hospital. Peyton was 3 years old when told she was suffering from Acute lymphoblastic leukemia (ALL), a cancer in which the bone marrow makes too many lymphocytes or a type of white blood cell.</p>
<p>After two weeks, she was admitted to our Comprehensive Cancer Center to receive her first dose of chemotherapy.</p>
<p>&ldquo;When we first got to UC Davis, Peyton was really scared,&rdquo; Cooley said. &ldquo;But we had awesome support from everyone at the pediatric infusion center. They really helped me, too.&rdquo;</p>
<p><a href="https://ucdavis.health/41qNeiv">Read more</a> about Peyton&rsquo;s two-and-a-half-year journey of intense treatment within our hospital walls.</p>]]></content:encoded>
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