Additional Patient and Family Resources

General Information and Resources

UC Davis Health Management and Education
Provides educational material and classes on diabetes and diabetes management and a range of other health topics.
https://health.ucdavis.edu/livinghealthy/

American Diabetes Association
National nonprofit organization funds research, information programs, and advocacy efforts to prevent and cure diabetes and improve the lives of people affected by diabetes. Founded in 1940.
https://www.diabetes.org/

American Heart Association
https://www.heart.org/

American Society of Transplantation
https://www.myast.org/patient-information/resources-transplant-patients

Donate Life America
Nonprofit alliance of national organizations and state teams committed to increasing organ, eye and tissue donation. Members of the public can register to be an organ, eye and tissue donor through the organization's website.
https://www.donatelife.net/

How Heart Transplant Works
Everything You Need To Know.
https://transplantliving.org/organ-facts/heart/

National Kidney Foundation
Nonprofit organization dedicated to preventing kidney and urinary tract diseases, helping those affected by them, and increasing availability of organs for transplantation.
https://www.kidney.org/

National Living Donor Assistance Center
Nationwide system that provides reimbursement of travel and subsistence expenses, lost wages, and dependent care expenses for people being evaluated for and/or undergoing living organ donation.
https://www.livingdonorassistance.org/   
Introduction to NLDAC video: https://vimeo.com/577338634    

Scientific Registry of Transplant Recipients (SRTR)
National database of transplantation statistics founded to support ongoing evaluation of the scientific and clinical status of solid organ transplantation.
http://www.srtr.org/

Sierra Donor Services
The nonprofit, federally designated transplant donor network serving nearly four million people in the Northern California and Nevada.
https://sierradonor.org/

The Donor-Seeker® Program
A 4-part video program in English or Spanish (in less than 15-minutes) to help waitlisted patients learn how to share their story and build a team to help them find a living kidney donor. Program includes a resource section with links, handouts—and a course completion certificate.  Program can be accessed here—or on a mobile device from the "Donor Seeker" app.   
https://transplantstrong.com/UCD-donor-seeker-program/ 

TransplantStrong
A website platform dedicated to helping kidney patients become more empowered transplant advocates. In this space, patients can learn how to proactively optimize their choices and use their voices to secure (and successfully maintain) a live-donor kidney transplant — before they require dialysis.
https://transplantstrong.com/  

United Network for Organ Sharing (UNOS)
The private, nonprofit organization that manages the nation's organ transplant system under contract with the federal government.
https://unos.org/

Support and Activity Groups

Support and activity groups can provide comfort, present information, teach coping skills, help reduce anxiety, and provide a place for people to share common concerns and emotional support.

Bay Area Association of Kidney Patients (BAAKP)
Patient-run support group includes support-group meetings in the East Bay and Peninsula, as well as online newsletters and forums.
http://www.baakp.org/

American Diabetes Association
Message boards and support forums
https://community.diabetes.org/home

Caring Bridge
Nonprofit social network with mission to keep families and loved ones connected during any type of health event.
https://www.caringbridge.org/

Disclaimer

The appearance of external hyperlinks does not constitute endorsement by UC Davis Health System or of the information or services contained therein. Views and opinions expressed on external websites and by external organizations do not necessarily state or reflect those of UC Davis Health System.