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MIND Institute
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August 10, 2022Researchers awarded $1.4 million to develop gene therapy for rare genetic condition
UC Davis MIND Institute researchers have been awarded $1.4 million to study the rare genetic condition CDKL5 Deficiency Disorder. The funding comes from the California Institute for Regenerative Medicine. The team will work to develop gene therapies for the condition.
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July 25, 2022Program helps over 400 families navigate autism resources and services
The UC Davis MIND Institute’s Family Navigator Program offers help accessing services, therapies and resources after an autism diagnosis. The free program has now helped more than 400 families and includes a parent support group.
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July 21, 2022Sign up to learn about MIND Institute studies you could take part in
The UC Davis MIND Institute has created a new, user-friendly registry for people interested in taking part in research. Signing up takes just a couple of minutes and allows you to learn about studies that might be a good fit for your family.
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July 18, 2022MIND Institute marks World Fragile X Day with expert discussion, teal lights
The UC Davis MIND Institute is marking World Fragile X Day with teal lights and an expert panel discussion. The genetic condition causes developmental delays and is the most common inherited cause of intellectual disability and most common single gene cause of autism.
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July 15, 2022
Summer Institute focused on life after high school for kids with autism, ADHD, more
The UC Davis MIND Institute’s annual Summer Institute on Neurodevelopmental Disabilities is focused on strategies to support individuals with ADHD, Down syndrome, autism and more as they prepare for life after high school. The virtual event will take place Aug. 3 from 9:00 a.m. – 1:15 p.m.
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July 12, 2022Social-sexual education for individuals with neurodevelopmental disabilities
People with neurodevelopmental disabilities, including autism, are often not given the tools to create romantic relationships in a meaningful, safe way. This puts them at risk for sexual abuse. A new educational program, tested in partnership with the UC Davis MIND Institute, may help foster healthy, romantic relationships.
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July 11, 2022Global team of scientists discover a new gene causing severe neurodevelopmental delays
UC Davis geneticist Suma Shankar led an international team of researchers on a set of studies that resulted in the discovery of a new gene linked to a neurodevelopmental syndrome that can cause embryonic death and profound developmental delays.
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June 23, 2022A mother’s blood may carry the secret to one type of autism
The reactivity of a mother’s autoantibodies to specific fetal brain protein patterns can predict a child’s diagnosis with a type of autism known as MAR ASD. MAR ASD was present in around 20% of autistic kids in samples from Arkansas and Philadelphia and was linked to significant autistic traits.
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June 16, 2022
Successful first year for UC Davis program for students with intellectual disabilities
Redwood SEED Scholars, an inclusive UC Davis program for students with intellectual disabilities, has wrapped up a successful first year. Ten scholars will move on to their second year of the first-in-California program.
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June 07, 2022Study explores health effects of wildfire exposure on babies and pregnant people
Researchers are looking for pregnant people who were in Northern California during last year’s wildfire season, which included the Dixie and Caldor fires, to take part in a study. They’re exploring the potential impacts of wildfire exposure on pregnancy and babies.
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June 06, 2022Camp MIND offers in-person fun for autistic children, those with ADHD and more
Camp MIND, a summer day camp for autistic kids and teens, as well as children with other neurodevelopmental disabilities, is back in person this summer. The program at the UC Davis MIND Institute offers crafts, activities and games.
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May 12, 2022
MIND Institute’s Sally J. Rogers receives lifetime achievement award for work on autism
Sally J. Rogers, a developmental psychologist at the UC Davis MIND Institute, has been honored with a lifetime achievement award from the International Society for Autism Research. Rogers, a pioneer in early autism intervention, co-developed a leading form of behavioral therapy.
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April 08, 2022
Teleconferencing program seeks to improve autism care in underserved areas
Project ECHO is a teleconferencing program that connects autism care providers from Northern California and around the world with MIND Institute experts. The interdisciplinary program is holding two new sessions, from May to November. Providers earn continuing education credit for taking part.
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April 04, 2022Autism characteristics can change significantly from ages 3 to 11
In two studies, UC Davis MIND Institute researchers have found that the character of a child’s autism traits can change significantly over time. In this Q&A, they discuss what the changes are and what may be driving them.
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April 01, 2022New human reference genome opens unexplored regions
A new complete sequence of the human genome has been published by an international consortium of scientists. The research team includes Megan Dennis of the UC Davis MIND Institute and other UC Davis investigators.
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March 31, 2022New insights into FXTAS could inform future research and clinical trials
Fragile X-associated tremor/ataxia syndrome (FXTAS) is a progressive genetic condition that causes movement challenges and cognitive decline. UC Davis MIND Institute researchers have shown, for the first time, how FXTAS can manifest in its earliest stages.
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March 29, 2022$4 million research program seeks therapy for rare genetic condition ADNP syndrome
The UC Davis MIND Institute is launching a $4 million research program aimed at finding transformative therapies for ADNP syndrome, a rare genetic condition. A group of interdisciplinary researchers will evaluate multiple gene therapies for possible use.
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March 18, 2022Robot researcher receives EDGE in Tech Initiative Athena Award
Veronica Ahumada, director of the Technology and Social Connectedness Lab at UC Davis, was honored with the Early Career Award at the 2022 EDGE in Tech Initiative Athena Awards. The awards were presented virtually last week.
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March 03, 2022
MIND Institute program trains future leaders in care of autism, ADHD, fragile X and more
The UC Davis MIND Institute’s Leadership Education in Neurodevelopmental and Related Disabilities program is recruiting. Self-advocates, family members, researchers and clinicians who are passionate about improving the lives of people with autism and other neurodevelopmental disabilities are invited to apply.
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March 02, 2022New partnerships will engage community in developmental disability research
The UC Davis MIND Institute has received funding from the Patient-Centered Outcomes Research Institute to create community partnerships to increase equity in research. The goal is to create a network that includes individuals with intellectual and developmental disabilities from diverse communities.
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