Research Participant Registry FAQ | UC Davis MIND Institute

UC Davis Health Information and Frequently Asked Questions

Frequently Asked Questions

What is the Research Participant Registry?

The Research Participant Registry is a database of individuals interested in being contacted about research opportunities at the UC Davis MIND Institute.

What is the purpose of the Research Participant Registry?

The purpose of the Research Participant Registry is to identify and confidentially contact individuals and families who are interested in participating in our research.

Why is the Research Participant Registry important to you and the community?

Individuals enrolling in the registry and participating in our research studies contribute to the advancement of science, which may improve the lives of future generations through the development of new understanding and services. Some studies also provide direct access to new treatments and early diagnosis to participating individuals.

Who can participate in MIND Institute studies?

Anyone with a clinical diagnosis of a neurodevelopmental disability (e.g., Autism, Attention-deficit hyperactivity disorder, Down syndrome, Fragile X syndrome, 22q11.2 deletion syndrome) as well as people with no diagnosis (e.g., typically developing) can enroll in the registry. Signing up in the registry allows the opportunity to be matched to studies enrolling participants but does not guarantee that you will be contacted. Some studies may have specific criteria (for example, particular age ranges or diagnoses) that need to be met for participation.

You may register yourself or your dependent child(ren).

How can I enroll in the Research Participant Registry?

It's easy! Click here, or on the Registry home page, under Step 1.

UC Davis Health takes protecting your information and privacy very seriously. All information entered in the Research Participant Registry is stored on our servers via secure and encrypted means and is compliant with HIPAA standards. Learn more about UC Davis Health's policies and compliance programs.