Educates health-care professionals from around the world in the treatment and management of individuals with neurodevelopmental conditions
The International Training Program in Neurodevelopmental Disabilities (ITPND) educates health-care professionals from around the world in the treatment and management of individuals with neurodevelopmental conditions such as autism, fragile X syndrome and related conditions, 22q11.2 deletion syndrome, Down syndrome and the RASopathies.
An estimated 300 million individuals worldwide have a neurodevelopmental disabilities, yet only a small percentage of health-care professionals are familiar with these conditions, and still fewer are expert in their treatment and management. The program is designed to address the need to train health-care professionals to conduct research on these conditions and care for individuals diagnosed with them.
Neurodevelopmental disabilities often are characterized by intellectual disability and may have associated physical and mental-health disabilities. For example, people with Down syndrome and 22q11.2 deletion syndrome also may have cardiac anomalies. Many of these lifelong conditions are evident at birth. They have no cure, though interventions increasingly are being developed to address many of their core symptoms. In some parts of the world, having such a condition often means a lifetime of marginalization and alienation from society and exclusion – even from one’s own family.
Most families are highly dependent upon guidance from trained professionals who:
I am very glad to have had the learning experience at the MIND. Now that I am back here in Colombia I am able to see many more possibilities for my patients. At the MIND, there were so many people working on the same goals as me. I learned so much!
Scholars from around the world will develop and/or improve their knowledge and skills in the following areas:
An individualized curriculum tailored to each scholar’s interests will maximize their existing skills and develop the core competencies that are for crucial for neurodevelopmental intervention specialists, regardless of their existing specialization or areas of interest.
The MIND Institute welcomes professionals and students from all corners of the globe to come train with us. Families who have a child with a neurodevelopmental disorder need your help. We will work and learn together to improve global health!
To learn more about the program, please contact Robert Miller, program manager, robmillerconsulting@outlook.com. Please use a subject line of “Interested in applying to the ITPND”
My two years at the MIND Institute allowed me to acquire powerful research skills and improve my general knowledge about neurodevelopmental disorders from a more scientific point of view. I was given the chance to apply my clinical experience in an evidence-based environment together with help from the faculty members. The Institute is a wonderful place where human values and science come together to improve the lives of children and families.
Hasan Abbas Abdulla Ali Hasan. ZYN-RELIEF Trial: ZYN002 Cannabidiol Gel for Relief of Insomnia and Anxiety in Fragile X premutation carriers. June 2024.
Andrea Elias-Mas, Jun Yi Wang, Laia Rodríguez-Revenga, Kyoungmi Kim, Flora Tassone, David Hessl, Susan M Rivera, and Randi Hagerman. Enlarged perivascular spaces and their association with motor, cognition, MRI markers and cerebrovascular risk factors in male fragile X premutation carriers. J Neurol Sci. 2024 May 17:461:123056. doi: 10.1016/j.jns.2024.123056.
Ramkumar Aishworiya, Dragana Protic, and Randi J Hagerman. Autism spectrum disorder in the fragile X premutation state: possible mechanisms and implications. J Neurol. 2022 Sep;269(9):4676-4683. doi: 10.1007/s00415-022-11209-5.
Ramkumar Aishworiya, Dragana Protic, Si Jie Tang, Andrea Schneider, Flora Tassone, and Randi J Hagerman. Fragile X-Associated Neuropsychiatric Disorders (FXAND) in Young Fragile X Premutation Carriers. Genes (Basel). 2022 Dec 17;13(12):2399. doi: 10.3390/genes13122399.
Ramkumar Aishworiya, Valica, T., Hagerman, R. An Update on Psychopharmacological Treatment of Autism Spectrum Disorder. Neurotherapeutics 2022.
Angel Belle C Dy, Lourdes Bernadette S Tanchanco, Jenica Clarisse Y Sy, Myla Dominicina Levantino, and Randi J Hagerman. Screening for Fragile X Syndrome Among Filipino Children with Autism Spectrum Disorder. J Autism Dev Disord. 2022 Aug 16. doi: 10.1007/s10803-022-05707-8.
Ana Maria Cabal-Herrera, Nattaporn Tassanakijpanich, Maria Jimena Salcedo-Arellano, and Randi J Hagerman. Fragile X-Associated Tremor/Ataxia Syndrome (FXTAS): Pathophysiology and Clinical Implications. J Int J Mol Sci. 2020 Jun 20;21(12):4391. doi: 10.3390/ijms21124391.
Dragana Protic, Maria Jimena Salcedo-Arellano, Maja Stojkovic, Wilmar Saldarriaga, Laura Alejandra Ávila Vidal, Robert M. Miller, Nazi Tabatadze, Marina Peric, j Randi Hagerman, and Dejan B. Budimirovick. Raising Knowledge and Awareness of Fragile X Syndrome in Serbia, Georgia, and Colombia: A Model for Other Developing Countries? Yale J Biol Med. 2021 Dec; 94(4): 559–571.
Dragana Protic, Ramkumar Aishworiya, Maria Jimena Salcedo-Arellano, Si Jie Tang, Jelena Milisavljevic, Filip Mitrovic, Randi J Hagerman, and Dejan B. Budimirovick. Fragile X Syndrome: From Molecular Aspect to Clinical Treatment. Int J Mol Sci. 2022 Feb 9;23(4):1935. doi: 10.3390/ijms23041935.
Dragana Protic, Petrina Kaluzhny, Flora Tassone, and Randi J. Hagerman. Prepubertal Metformin Treatment in Fragile X Syndrome Alleviated Macroorchidism: A Case Study. Advances in Clinical and Translational Research, Volume 2 Article ID: 100021
Dragana Protic, Elber Y Aydin, Flora Tassone, Maria M Tan, Randi J Hagerman, and Andrea Schneider. Cognitive and behavioral improvement in adults with fragile X syndrome treated with metformin-two cases. Mol Genet Genomic Med. 2019 Jul;7(7):e00745. doi: 10.1002/mgg3.745.
Manman Niu, Ying Han, Angel Belle C. Dy, Junbao Du, Hongfang Jin, Jiong Qin, Jing Zhang, Qinrui Li, and Randi J. Hagerman. Fragile X Syndrome: Prevalence, Treatment, and Prevention in China. Front. Neurol., 06 June 2017.
Nattaporn Tassanakijpanich, Jonathan Cohen, Rashelle Cohen, Uma N Srivatsa, and Randi J. Hagerman. Cardiovascular Problems in the Fragile X Premutation. Front Genet. 2020 Oct 8;11:586910. doi: 10.3389/fgene.2020.586910.
Nattaporn Tassanakijpanich and Randi J. Hagerman. Fragile X premutation and associated health conditions: A review. Clin Genet. 2021 Jun;99(6):751-760. doi: 10.1111/cge.13924.
Nattaporn Tassanakijpanich, Forrest J McKenzie, Yingratana A McLennan, Elisabeth Makhoul, Flora Tassone, Mittal J Jasoliya, Christopher Romney, Ignacio Cortina Petrasic, Kaye Napalinga, Caroline B Buchanan, Paul Hagerman, Randi Hagerman, Emily L Casanova. Hypermobile Ehlers-Danlos syndrome (hEDS) phenotype in fragile X premutation carriers: case series. J Med Genet. 2022 Jul;59(7):687-690. doi: 10.1136/jmedgenet-2020-107609.
Qinrui Li, Ying Han, Angel Belle C. Dy, and Randi J. Hagerman. The Gut Microbiota and Autism Spectrum Disorders. Front. Cell. Neurosci., 28 April 2017.