Local Resources for Cleft & Craniofacial Conditions

UC Davis Health Campus:
Ronald McDonald House (916) 734-4230 www.rmhc.org
Kiwanis Family House (916) 736-0116 www.kiwanisfamilyhouse.org
Alta California Regional Center:
Early intervention services (916) 978-6400 www.dds.ca.gov
California Children's Services: (916) 875-9900 www.dhcs.ca.gov/services/ccs
Well Space Health Oak Park
Community Health Center:
Pediatric Dental Clinic (916) 737-5555 www.wellspacehealth.org
The Effort Oak Park Dental Clinic (916) 233-4910
Child Action: Subsidized Child Care (916) 369-0191 https://wp.childaction.org
My Friends Pediatric Day
Healthcare Center:
www.myfriendsonline.org
Orangevale (916) 987-8632
Elk Grove (916) 987-8632

General Resources for Cleft & Craniofacial Conditions

About Face
A nonprofit support group for facial differences.

 

American Cleft Palate Association
Dedicated to all aspects of facial birth defects. Organization for health
Care professionals representing over 32 disciplines.

 

FACES – National Craniofacial Association
People with craniofacial deformities resulting from birth defects, injuries
or disease may apply to this nonprofit group for financial assistance for
non-medical costs.

 

State Parent to Parent Centers
Parents who have special need children are privileged to have federally funded
parent-to-parent advocacy networks in every state. A lot of Special Education
Information.

Diagnosis Specific Resources

Cleft Lip & Palate

Cleft Palate Foundation
Educational network, access to qualified medical teams, booklets, videos, publications.
Parent education booklets and fact sheets  in multiple languages for a variety of cleft related concerns.

Pierre Robin Sequence
Information group for families affected by Pierre Robin Sequence and
professionals who are interested in PRS.

Stickler Syndrome
Stickler involved people.

Velo-Cardio-Facial Syndrome  (22q11.2 Deletion, DiGeorge Syndrome)

 

www.cleftline.org American Cleft Palate Association; Family Services

www.asha.org American Speech-Hearing Association: Developmental speech and language milestones can be found at this website through 5 years of age.