Local Resources for Cleft & Craniofacial Conditions

UC Davis Health Campus:
Ronald McDonald House (916) 734-4230 www.rmhc.org
Kiwanis Family House (916) 736-0116 www.kiwanisfamilyhouse.org
Alta California Regional Center:
Early intervention services (916) 978-6400 www.dds.ca.gov
California Children's Services: (916) 875-9900 www.dhcs.ca.gov/services/ccs
Well Space Health Oak Park
Community Health Center:
Pediatric Dental Clinic (916) 737-5555 www.wellspacehealth.org
The Effort Oak Park Dental Clinic (916) 233-4910
Child Action: Subsidized Child Care (916) 369-0191 https://wp.childaction.org
My Friends Pediatric Day
Healthcare Center:
www.myfriendsonline.org
Orangevale (916) 987-8632
Elk Grove (916) 987-8632

General Resources for Cleft & Craniofacial Conditions

About Face
A nonprofit support group for facial differences.

 

American Cleft Palate Association
Dedicated to all aspects of facial birth defects. Organization for health
Care professionals representing over 32 disciplines.

 

FACES – National Craniofacial Association
People with craniofacial deformities resulting from birth defects, injuries
or disease may apply to this nonprofit group for financial assistance for
non-medical costs.

 

State Parent to Parent Centers
Parents who have special need children are privileged to have federally funded
parent-to-parent advocacy networks in every state. A lot of Special Education
Information.

Diagnosis Specific Resources

Cleft Lip & Palate

Cleft Palate Foundation
Educational network, access to qualified medical teams, booklets, videos, publications.
Parent education booklets and fact sheets  in multiple languages for a variety of cleft related concerns.

Pierre Robin Sequence
Information group for families affected by Pierre Robin Sequence and
professionals who are interested in PRS.

Stickler Syndrome
Stickler involved people.

Treacher Collins Syndrome
Treacher Collins Foundation. Great video by foundation “Rare Should Not Mean Alone”.

Velo-Cardio-Facial Syndrome  (22q11.2 Deletion, DiGeorge Syndrome)

 

www.cleftline.org American Cleft Palate Association; Family Services

www.asha.org American Speech-Hearing Association: Developmental speech and language milestones can be found at this website through 5 years of age.